My struggle with Lupus

[Sussex12]

Hello my Name is BeverleySamson and I have had Lupus a long time now in the early days of having lupus I spent most of my time in bed feeling sick and confused as to what was going on it was like someone on the inside looking out my whole body was like a mine field of confusion I am really happy now as it helps with my lupus and the pain I never get down thanks to whoever reads my post

[Spanielmadlady]

Hello 👋 Beverley x

[Sussex12 in reply to Spanielmadlady]

Hello how are you xx

[Spanielmadlady in reply to Sussex12]

I'm ok thank you abit fatigued but been naughty and not paced myself this week....you know how it goes one job leads to another 🙄i was diagnosed with lupus and lupus nephritis 2 years ago after been told for 5 years nothing was wrong yet unable to come off prednisolone.im now on hydroxchloroquine prednisolone and mmf and have so far been relatively stable.

I'm a pleased you are able to be happy...I think being positive makes a difference in how you live and cope with all the changes and challenges AI illness brings xx

[svfarmer]

Hi Beverley I think it really helps being positive - it’s hard sometimes with the ups and downs of lupus but I try to have a smile on my face everyday and appreciate all the good things in life. Best wishes x

[Sussex12 in reply to svfarmer]

Thank you so much for your reply could I ask where you live please xx

[svfarmer in reply to Sussex12]

Yes of course- I live in Bristol, how about you? Xx

[Sussex12 in reply to svfarmer]

Eastbourne sussex that's a shame xx

[svfarmer in reply to Sussex12]

You can always private message me if you need a chat xx

[rosebud52]

Hi Beverley, keep smiling and laughing it's a tonic on its own 😀🤭

[CecilyParsley]

Hi Beverley, . I am so delighted that you are happy, I know that stress and emotions play havoc with our bodies and minds. Long may it continue for you xx

[Nvrenfhorses2]

Hi Beverly, no one truly knows what rash of us is going through. Our daily struggles. I’m not ashamed to say I’ve thought I’d rather be dead than to continue the rollercoaster of being chronically ill. But today, when I feel GREAT, it’s make all those bad times disappear! Like having a baby! The pain is gone and forgotten because your filled with joy! I hope you can embrace the joyful times. We are here for you during the lonely dark moments! 💗