Hi does anyone have an issue with dull aches in their calve muscles as well as random dull intermittent pains in their hands and feet? If so have you found a cause for this?
Could be on one side for a day or two and then switch to the other side or both legs at a time? (Also feeling like your calf muscles are blowing up like a balloon)?
I do and my legs feel like lead .for me the cause is b12 deficiency and it usually gets worse in the run up to my injection.i have it now and my injection is due 5th Nov x
Spanielmadlady, I’m sorry that thus is happening as you wait for your injection. Have you talk you talked to your doctor about adding an extra injection? I used to inject myself every couple days and the once a week but my new specialist tested me and the result was over >2000 and she told me to stop. I’ve heard different theories on b12 and sometimes just unsure. Have you considered self injections? I think it’s hreat that the UK can test for holotranscobalamin, unfortunately where i live this test isn’t ordered.
I have my injections every 8 weeks instead of every 12.i have asked and was told no the more you have the more you want 🤷♀️ I do use the sublingual spray in the run up to my injection.it helps but it's not enough to rely on completely.it comes to something when you look forward to injection day ! Ive had injections for quite a few years now.here self injection is frowned upon.xx🤗
P.s i also take Armour 75mgs 👍 xx
Ti can’t believe they told you that. It sounds like those people don’t deal/experience it for themselves b12 deficiency, PA or AAIG. I hear ya, you get that kick and get up and have energy to do things and then fatigue sets in.
Do you go on Facebook much? If you ever consider it, there is a Vitamin B12 deficiency/ Pernicious Anemia group run by Pat Kornic. She educates a bit differently from the group here but might provide extra insight if you’re interested. I have AAIG (antibodies and early affects seen through upper endoscopy) but my B12 serum wasn’t low enough to get the okay from doctors for them to prescribe it for me (somewhat of a long story ending with a bit of a mess and Gastro was not helping). Anyway, through that group i figured out where to order my own and learn about the co vitamins that needed to be supported. Even if it’s frowned upon; if it helps, in my personal opinion, then it’s worth it.
I too take Armor 90mg, do you find it to be any different or better from synthroid?
Do you ever just get confused about whether something is helpful or not helpful since some symptoms and issues overlap?
I have PA and no i dont use facebook but my daughter does so will have a look.i dont think drs appreciate what a big impact it has on our ability to function.i think its only something like 10p per Injection.
Armour has been a godsend to me.i proved twice I cant take thyroxine. They just couldn't stabilise my bloods and I was getting worse. Here in the UK Armour is imported from the US , is unlicensed and can only be prescribed by a hospital consultant.they added T 3 which helped but it has a short shelf life in the body and by teatime it was like someone turned the power off so they agreed to let me try Armour.Thyroxine (T4) is the storage hormone and you need T3 to convert it so if you cant make enough T 3 you cant use it and just store it.as Armour is a natural product it contains all 4 thyroid hormones 👍
I was diagnosed with Hashimoto's well before the lupus so I know the Armour has helped but it certainly is hard to attribute symptoms when so many overlap.im struggling with fatigue at the moment and put it down to my Injection being due but my steroids are low and my chest is alittle sore too so who knows 🤷♀️ xxx
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