Kind of crawled into a hole for a while but am back and thought I’d bring some laughter. My daughter was trying to get all the layers pinned down and she didn’t get very far 🤭😂.
In other news, I finally got my appointment with UCLA neurology and the doctor also agreed there was some inflammation happening. She ordered 13 plus tests, some of which have already been tested, as well as some new tests and should be hearing back soon. A couple I had never heard before: paroneoplastic and neuropathy profile with recombx. Reading the descriptions are bit scary. She mentioned they are more to rule things out. Will be doing another saliva dna test and will be meeting with her next month. Looking forward to seeing what she says.
My Rheumatologist dave me the orders to retest after a period of time so we will see what happens then also.