Glad of your support

[Bronn]

An early good morning to you all.

I am grateful for everyone's help on here, even though it may take me a while at times to reply.

I've been awake since 03.30, becoming a regular wake up pattern then I'm back to sleep about 3 maybe 4 hours later. Then I'm tired all day.

Pain in my legs is what has me awake today, it has been my neck and shoulders lately, where I have really bad osteoarthritis 😖

I am fed up with either this or that pain. Tried keeping a lil active but it's getting difficult with pains and my hands/arms jerking so much. Threw a knife at hubby again last week it was my cup of coffee yesterday again 🙄 so he's staying a few steps away now unless I need his help.

Some warm milk and pain killers then try and sleep 🤞

[Horsewhisper]

Hi Bronn, I have messed up sleep patterns at the mo mainly due to steroids and probably a bit of stress due to the pandemic. I try and just go with it and accept that that’s how it is, it seems to help a little. Have you tried any OTC sleep remedies? These may help now and again to anchor you into sleep a little longer. I hope you get some respite soon and hubby stays injury free! 😊xx

[svfarmer]

Hi I’m so sorry your in so much pain at the moment- sending hugs 🤗- gentle ones. X

[MissusTee]

I am prescribed bu tec patches and meloxicam for the osteoarthritis. Might be worth asking.

[CecilyParsley]

Hi Bronn I have a very broken sleep pattern because of pain and bladder urge and frequency. I have tried everything from sleeping pills to antidepressants without much benefit. Now I take 2 Garbapentin at night and sleep with my legs raised and I am getting at least four hours in between bladder urges. Mind you it is very odd to wake from a deep sleep and try to struggle out of bed while your legs are in the air lol. Sending you big Cwtches and hoping things improve for you xx

[Bronn in reply to CecilyParsley]

Hi Cecily, I've been sleeping with my legs raised for a 4 weeks now and 3 x300mg of gabapentin at night too. I'm having to lower my legs a lil as I have severe disc problems in lower back and it was too painful to sleep with my legs raised too high. I have switched around some of my meds with times I take. At the moment it seems hit and miss as to whether I sleep. My lupus flares are getting more frequent and more often so I've put it down to being in so much pain causing me not to sleep. I will persist with new sleep routine, and yes it is odd struggling to get out of bed, thankfully my e/wheelchair stops me from falling 🤣🤣

Stay safe and well 💐

[CecilyParsley in reply to Bronn]

Hi Bronn, I think many things stop us from sleeping, pain being one of the worst culprits. For me bladder frequency is a huge thing too. My new Rheumatologist suggested sleep apnoea but I am not aware of anything stopping me breathing although hubby says I do snore at times. Stress and anxiety is another thing. Sometimes no matter what I do I do not sleep a wink. Other time’s I just cannot wake up, my eyes are rolling and I stagger about for a few hours on getting up. I hope you find something that works for you. Stay safe too xx

[Bronn in reply to CecilyParsley]

Hi Cecily, I too have bladder urges due to overactive bladder. Yes I too sometimes sleep so good I'm like a zombie in the morning. Stress now that's something I've struggled to control for years. So all that added to pain from numerous conditions it's not surprising I don't sleep much most of the time. I am going to speak to rheumy about this and my numerous flares next week 🤞 I've been told there's hope for us all. Many thanks Take care 💐

[CecilyParsley in reply to Bronn]

Bless you. Before my illness I thrived on stress but now it makes me feel very unwell. I only have to see a brown envelope and I am stressed to hell. Illness makes you so vulnerable I think. Good luck with your Rheumatology consultation. I hope they can help you xx

[Bronn in reply to CecilyParsley]

Thank you 💐