I'm sure its lupus

[Daisy1962]

Please advise me, my background is sero negative APS diagnosed at St Thomas' in 2004, positive anti ro same time so told SS. Diagnosed fibro 1997. Though I've always had more lupus symptoms than SS.

I get raised itchy blisters on wrists and lower legs, mouth ulcers, arthralgia, multiple spine fractures, digestive issues, migraines, low vitamin D, gluten intolerance, depression, brain fog, sight disturbances, palpitations, light headedness. Just this summer for the first time I have been badly effected by the sun getting the malar rash, so much loss of muscle power I couldn't leave the house or walk around for nearly 4 weeks after sitting in as I always have. 6 weeks later my face still stings and now the rash returns even in cold wind.

I've just had bloods done and it seems my anti ro has vanished, my rheumatoid factor came out at 15 so ok but my gfr is 89 so under the lowest marker yet I've been dismissed.

I cant get back to local rheumatology until goodness knows when as they aren't accepting referrals.

thank you for reading, im 59 by the way

[Spanielmadlady]

Hi.i have lupus nephritis and my gfr is 60.yours at 89 is only 1 below normal of 90 so I dont think you should be overly worried.you can ask for a second opinion anywhere so might be worth asking your gp if other places are taking referrals if there is no sign of a local appointment anytime soon x