Prof Neil Scolding

[TM1970]

Guys

I live in N.I and see my neurologist and rheumatologist within the Belfast Trust. I have SLE/Vasculitis and as with most of you a whole host of other cling ons. My latest neurologist (I’d never seen her before and was put on her list after my own neuro retired ) was awful, tried to write me off as FND without examination or tests. That’s a whole different story. Anyway after discussion with rheumatologist etc the head of neurology decided they don’t have the specialist knowledge to treat CNS Lupus which is what I was originally diagnosed with prior to my exam with the nightmare neurologist. So the upshot is I’m being sent to England to see a neurologist who specialises in lupus. His name is Prof Neil Scolding in Southmead Hospital, Bristol. Has anyone had any dealings with him or even heard of him? Hope everyone is holding on and keeping safe. Love, Terri X

[eekt]

Sorry, can't help with Prof Fielding but just to say many lupies regard FND as a F-word! Hope you get the treatment you deserve xxx

[TM1970 in reply to eekt]

Hi eekt, thanks for reply. I know hundreds of neuro patients are being rediagnosed with FND seemingly to effectively stop their meds and discharge them back to their GP. I run a Facebook group for neuro patients and have stats that would curl your hair. It’s difficult to know what to do, we’ve escalated our concerns as high as we can, and it ways heavily on me. Whole other story eekt. T xxxx

[eekt in reply to TM1970]

Indeed! xxx

[stiff19]

So sorry 😐 fnd or fibro are being dished out like sweets , unfitting to many and just unacceptably , so sorry it’s been dished to you too and I just don’t know how to get past these situations. I don’t have anything to offer sadly regards to who you are seeing in Bristol but wish you good luck with appointment and hope you get better help than you’ve had from nightmare neuro, I know the feeling, I’ve had nightmare rheumy.

Best wishes 🙏

[TM1970 in reply to stiff19]

Thank Stiff, I know exactly how you feel. Txx

[KayHimm]

Glad you are seeing a neurologist with expertise in lupus. These neuro symptoms are tough enough without being dismissed like that.

Please keep us posted. And best of luck.

K

[TM1970]

Thanks Kay xx

[Spotty-ewe]

Have you tried Googling Prof Neil Scolding? You might find out more about him that way. Wishing all the best and let us know how you get on. 🙏🏻 Spotty

[TM1970 in reply to Spotty-ewe]

I had a look there spotty and seems to be a great call. I’ll keep you all updated. Tx

[Spotty-ewe in reply to TM1970]

That’s great TM. Wishing you all the best and looking forward to hearing how it goes. 🙏🏻 🤗

[TM1970 in reply to Spotty-ewe]

Thank you Sxx

[KayHimm]

Spotty had a great idea. Since no one knew Dr. Scolding so far, I looked at his bio. I completely understand why they are sending you to him. He has an interest in « inflammation in the nervous system. » There are not many neurologists who have expertise in autoimmune disease, which is why they want him to evaluate and treat you. Fortunately, it is a growing field. We now have a few fellowship programs in the US run by doctors like him.

Really happy for you that your rheumatologist is seeing to it that you get the best care.

Xk

[TM1970 in reply to KayHimm]

Thank you Kay, I’ll report back anything useful. I’m very lucky to have access, Tx