Well what a 24 hours, Boris going into intensive care has done nothing to ease my angst.
Can I ask, the second stage of this disease is based around an overactive immune system ... does this mean that lupus patients are more prone to end up moving into that stage as we are predisposed to that already? I have AI neutropenia too which means that I have little ability to fight the virus initially ...
But on a brighter note, the ducks are performing this morning, Bianco is still on her nest which happens to be next to the house so that I can keep an eye on her...
stay well all and stay in!
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Ieuann133
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What a lovely pic - Pape is looking round at you and saying “well where is it then?”
I too felt enormous angst last night watching the news, let’s hope Boris pulls through. Trying to keep an upbeat outlook at the moment and love your daily aquatic bird posts! X
No-one knows. It is a new disease and at present it isn't following the patterns they expected - Simon Clarke commented on that yesterday, initially it was thought it was mainly older people who would be particularly ill and it was mild in young people. No it isn't.
Did you see and complete the survey Chanpreet put up? That is how they will establish the sort of information they need to say one way or the other. So whether you get CV or not - be part of it:
One doctor has said anecdotally that they are surprised they have seen relatively few sick patients with a/i conditions - but how can you know is this a tamed immune system or just that most of us are being very consistent about lockdown?
It may sound harsh - but if you look at the Boris story, there is a picture circulating of Boris, Hancock, Whitty and Vallance standing on a stairs, definitely NOT practising social distancing. Cummings was also part of their little group - all have contracted CV. The statistics are that about 1 in 5 will develop more severe illness. Boris is that one.
Lockdown and consistent social distancing is the way to reduce the risk of getting it. They didn't do it properly - just like the Scottish CMO. Do as I say, not do as I do. But beware - your sins may find you out.
Thank you, I felt very safe when lockdown came into practice, I think that the thought of relaxing those rules are worrying me... but I can choose to stay isolated. If only I could get a mild version over and done with! My niece who is on the front line as a respiratory doctor at the royal free in London, got CV 3 weeks ago. She was pretty ill for a week but then bounced back and was back in work within 7 days. She is 29 and a healthy fit girl!
I have to say I feel a lot safer here in Italy than I would in the UK. Here no-one goes out who shouldn't - the police are onto it when they do and it means on the spot fines. As of today - masks are compulsory when we are out of the house at all and are approached by anyone. 2m distancing is standard anyway. But I can go shopping for food in the village (not outside it) and feel pretty safe - no queues, no shortages (except, it seems, gin) and maybe 50 people altogether in a big supermarket. 4 max allowed in the butcher and baker, no need to restrict nos in the pharmacy!
Done properly and firmly policed - lockdown works. Our numbers are falling after 3 weeks/ That's how long it takes to get through the door - but you can't stop there,
Filled in the questionnaire, helps to think that you are doing something constructive!
We here are probably the safest people in the land from Covid because we don’t go anywhere or take risks at all. I can understand the news is a great worry. I worry about my sons and their partners - one on frontline in ICU. I wish it was affecting older people only - that would calm me a lot because they aren’t those on front line of health or care and can hopefully be shielded.
However worrying so much when you have your lovely looking outdoor area and your wonderful animal family seems futile - so please just try and enjoy as none of us know how this virus will affect those who are well or those with underlying conditions - including ours. So speculation is as futile as worry. 🤷🏼♀️😊
What a lovely photo. You have a wonderful view from your garden.
We’re lucky to have a good size garden, surrounded by fields.
I keep thinking how lucky we are. My 3 can play outdoors whenever they want. My boys playing football might cause trouble now and again, but they’re safe. And they’ve got each other for company.
I can’t imagine having children at such a time and being confined to a flat or a very small garden.
Yes, the news about Boris is unsettling. He looked far from well when he clapped outside No. 10 for the NHS on Thursday. Poor man. And his poor girlfriend, who is pregnant of course. Whatever your political persuasion, you’ve got to feel for him.
As you probably know, I’m in Pembrokeshire and we’re so far away from the figures in the cities. London. Birmingham. Manchester. The Gwent area has been very badly hit. But that’s a 2.-2.5 hour drive from us. I know we’ll have deaths, don’t get me wrong, we’re not immune. Our area is very rural. People are sticking to the lock down and I’ve seen many people on different Facebook groups reporting people who aren’t playing by the rules immediately. It’s tough in a city, blocks of flats, less space. Look at New York.
My best friend from school is a Nurse in Cambridge and she trained in Cardiff, so many friends still there. We’ve talked about why Gwent is struggling with such a big number of cases compared to the rest of Wales. About 10 days before lock down Cardiff was still hosting concerts. The Script. Then The Stereophonics did a gig about 5 days before lock down. Cheltenham Races went ahead the week before lock down too. I know a few racing people who went to Cheltenham and caught it there and have been very unwell. But if you look at the area and the gatherings that took place leading up to lock down, you can see why the outbreak is bad in that area. Well that’s what we think contributed to it.
Now then, yes, I too (like many of us) am worried bout the Boris... I had my first virus nightmare last night... and (as I am awake nearly every 2hrs or more due to various pain) was thinking of Boris through the night... (steady..!!). It is all extremely worrying, of course, especially when someone so very high profile.. and our current "leader". He's been so very warm and real about all of this... and I do hope he recovers pronto.
And,yes, don't know if you saw, but the other week I finally posted (warily) about the Bbc article I had found previously, entitled "CoronaVirus- what it does to the body". It totally focused my mind and made me feel the majority of us AI bods are going to have definitely shield. The first and second stage of what it does are one thing, but then, if it deteriorates further it is (OBVIOUSLY) er, not good...the virus takes over. And the article mentioned many times "immune system" and "inflammation" etc etc which is why my hair started to go up on the back of my neck (not a good look). I know Paul of Lupus UK has stated he is asking for further clarification on whether we are at higher risk but I think it has to be... we are being asked to shield by the NHS and/or our Rheumy's and clinicians (I am and I know so many of us are) or isolate (athough I think we should all shield, no risk taking, if you can as obviously tons of us have kids, work, need to shop etc). I have neutropenia too and I noticed on the Johns Hopkins University page hopkinsguides.com/hopkins/v... that 70% of those hospitalised (Washington State anyway) with pneumonia had leukopenia...ie cannot fight due to low white blood cells. All we can do is keep safe, follow the guidelines and communicate (to stop our stress levels going beserk!). It's difficult living alone, but I know there are so very many like us... What I'd do for a real hug right now !! This too shall pass peeps... and for now let's continue as we are - being there for each other xx
I feel so heartened by the responses you made to my post... I was fine with lockdown, really calmed me but now that there is talk of taking it away, I panicked along side realising what happens when you get this virus. It takes me back to when I was first diagnosed and my future was far from certain... but today, I have come to realise that to a certain extent the future is in my hands. I can continue to shield and be hyper vigilant and fingers crossed, a vaccine and new treatments will be found.
Carpe diem is now my motto.
Thank you ... and here is an ehug, you all deserve one but a special one to you DJK99, you are truly fabulous xxx
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!! This too shall pass peeps... and for now let's continue as we are - being there for each other xx
LUPUS UK, BBC Breakfast & the Virtual London Marathon
Anyone want to contribute? 
Just want to cry!!!!!
Just wanted to say...
Not sure I want to take any meds after readingn all the side effects
