I have decided to post this due to the high levels of confusion there appears to be on other threads, and the misinformation flying around. Hopefully Lupus UK will post something similar soon.
Here are the facts. There are two major categories that the government are using for those who are at high risk of complications from Covid-19: (1) vulnerable and (2) extremely vulnerable.
The "vulnerable" category includes those over 70, pregnant or with underlying conditions (including SLE, no matter what the treatment). These people are to self isolate within their own home but can go out for a walk once a day as long as its 2 metres away from others, and should only attend the pharmacy/ shops if absolutely necessary (but following strict social distancing). Household members are to limit leaving the house as much as possible and strictly follow hygiene. This is the same guidance for everyone now, but those who are vulnerable must be especially cautious, and follow it for 12 weeks (instead of 3).
The "vulnerable" social distancing guidance is here: gov.uk/government/publicati...
The "extremely vulnerable" category includes cancer patients, transplant patients and (importantly for us) those on high immunosuppressive medication that equals 3+ on the scoring system. This does not include hydroxychloroquine. The scoring system can be found here: healthunlocked.com/api/redi...
These "extremely vulnerable" people are mostly being written to by the NHS / government with advice. It applies in England, Wales and Scotland. The advice is not to leave the house or your garden for any reason and to self isolate from those in your household completely. This means separate beds, bathrooms (if possible), towels and staying 1-2 metres away at all times. All surfaces should be cleaned before use by the person, and schedules might need to be drawn up for showering etc.
The "extremely vulnerable" guidance is here: gov.uk/government/publicati...
I hope this helps some and provides clarify for those who are confused.
I have personally had suspected Covid-19 after seeing my sister for a couple of hours (the only person I've had contact with outside my house in months). It is just bad luck sometimes, but we can all do our best to minimise our risk as much as possible.
They are not testing sadly but I was rushed to hospital by ambulance and the doctors were fairly certain. I will never know for sure, but after a short spell in hospital I am now recovering at home. We are on day 11 of isolation and I will continue for 12 weeks just incase I am not immune. I am in the extremely vulnerable category due to being on over 5mg prednisolone and MMF.
I am happy to answer questions people may have but also want to say that many of us who are high risk will survive this if we seek medical advice early.
All the best to everyone and keep smiling x
Methotrexate, risk level and teaching 
Third vaccine dose
