Lupus and Covid19

[Melaxx]

Hi , are we all a risk group or it depends how severe our problems are?

I haven’t received a text or letter from the NHS yet . I’m on cortisone tablets 30 mg for 4 weeks ( this is my 3 week) after that I’m guessing I should start to decrease. My appointment for checking muscle and nerves reaction has been cancelled. I have an appointment for an ecg that is still on but I’m guessing it will be cancelled soon . Very difficult get in touch with a GP , obviously I do understand we are in unprecedented times , I wished I knew what’s right .

Thank you 😊

Lots of love to everyone 💕

[PMRpro]

If you go to this

rheumatology.org.uk/Portals...

you will be able to see the risk score assessment and work out where you are.

I imagine you will start at very high risk for now and then it will reduce to just high risk as you reduce the dose. High risk precautions are the ones you should be doing anyway - stringent self isolation - staying at home and not letting anyone other than your usual immediate household come in the house and keeping at least 2m away from anyone if you do go outside.

[tree_shadow in reply to PMRpro]

My understanding is this is a generalised document not specific to Lupus. So simply applying it to Lupus may result in confusion.

Lupus UK is filtering the information and providing a summary, I think is easier to understand.

Lupus UK link below.

lupusuk.org.uk/coronavirus

[svfarmer]

Hi yes if you have lupus you are high risk - stay safe x