I've just recently told my work that I will be on 12 week isolation as I fall into that after reading an update on the site that all lupus patients have been advised to self isolate for 12 weeks no matter what medication your taking.. I now have read its SLE patients but I'm SCLE and only on hydroxychloroquine. I'm so confused right now my rhumy clinic nurse said I did fall into that category last week but I don't even think she knew herself.. I haven't had a flu jab yet as I was only diagnosed last July but she said I would definitely be on the list because every patient under the rheumatology clinic all get flu jabs.. Anybody else got the same as me that cud share a little light on their situation or what they have been told... Theres just so much uncertainty and I don't know whether I'm coming or going right now.
THANKS X
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Stacy123456
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is the specific guidance for rheumatology. Look at the two tables, the first lists by illness, the second by drugs.
As far as I can gather, the 12 week total isolation guidance is not for all patients, it is for the very high risk ones. For those at less risk someone classed the social isolation as stringent and very stringent. And of course, when you share your home there are other considerations.
You will get a letter in the next week, if you haven't had one by next Sunday you are to contact someone (can't remember off the top of my head now) for more information.
Personally I think it is a bit slow - we know here in Italy the difference even 24 hours would have made at the start. The UK has been playing about for weeks.
No I didn't receive a letter but my doctor has signed me off for 6 weeks because the stress of it all has caused a lupus flare.. Isolation is really getting to me now I nearly wish I was back working again.. Hope ur keeping safe xx
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