I am 42 with sle and heart and lung diseases just... - LUPUS UK

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I am 42 with sle and heart and lung diseases just looking for new friends

Enya2010 profile image
24 Replies

I am 42 I have sle lupus and heart and lung diseases I'm on a convocation of drugs. I'm looking for new friends to bond with for advice and support and to be a support to others too.

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Enya2010 profile image
Enya2010
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24 Replies
NeuronerdDoaty profile image
NeuronerdDoaty

Hello and welcome 🙋‍♀️💐

Enya2010 profile image
Enya2010 in reply to NeuronerdDoaty

Thank you xx

Careful1 profile image
Careful1

Hello 🙋

Enya2010 profile image
Enya2010 in reply to Careful1

Hi thank you for replying x

thestorm profile image
thestorm

Hi Enya, and We are glad you found this site! Everyone here is very helpful and caring. Great group of supportive people from near and far, with many conditions and advice. Sharing stories of courage, knowledge, and information. They are pillars of hope, cathedrals of inspiration to this hub. So many of them have helped me personally, a great deal, I am truly grateful to all of them. So ask, and the doors shall be opened, seek and you shall find lending helping hands and listening, sending you welcome, peace, blessings, thestorm

Enya2010 profile image
Enya2010 in reply to thestorm

Thank you it means a lot o know I'm not alone xxx

Lupiknits profile image
Lupiknits

Hello and welcome! This is a good place to be: I’m very glad I found it.

Enya2010 profile image
Enya2010 in reply to Lupiknits

Thanks it means a lot to me I'm sure I will get advice and tips from you all xx

Horsewhisper profile image
Horsewhisper

Hi Enya and welcome - you will definitely find what you are looking for here - someone somewhere will help you to find the answers you are looking for and the sharing of your experiences will help others. Xx

Enya2010 profile image
Enya2010 in reply to Horsewhisper

Thank you it means a lot to know I'm not alone xx

butterfly1964 profile image
butterfly1964

Hi Enya2010,

This forum will be a relief to you and we are all going through different difficulties with our Lupus and related conditions 😩it as been so helpful to me and I am sure it will be for you too..

Welcome jx

Enya2010 profile image
Enya2010 in reply to butterfly1964

Bless you thank your means a lot to me xx

Hopes77 profile image
Hopes77

Hello Enya ( love the name by the way ) and welcome x

Krazykat26 profile image
Krazykat26

Hello n welcome Enya 💐

You'll find out about all things autoimmune on here..n we all share our stories!!

Lupus is an illness that makes us feel very alone at times..but this forum is full of people who understand n appreciate how difficult it is living with it 24/7!!

U are not alone 🤗🤗xx

Enya2010 profile image
Enya2010 in reply to Krazykat26

Thank you it means a lot to me as god it gets me down but thank you for caring xx

Krazykat26 profile image
Krazykat26 in reply to Enya2010

We're all in the same boat so we have an understanding of what u r going through.

Lots of cyber hand holding here 🤝🤝🤝xx

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Enya2010 ,

Welcome to the LUPUS UK Community Forum. I hope that you'll find this a great place for information, support and to make new friends.

If you're also interested in meeting other people living with lupus in person, we have a network of regional groups across the UK. You can find your nearest one on our website at lupusuk.org.uk/regional-gro...

We also have a team of trained volunteer telephone contacts. If you'd like to speak with someone in this way, please let me know and I can provide you with more details.

If you need more information about lupus and LUPUS UK we have a free pack which you can request or download from our website at lupusuk.org.uk/request-info...

If you need anything else, please let me know and I will do my best to be of assistance.

Lily77 profile image
Lily77

Hello Enya, thank you for reaching out and joining the site. There are some very special people on this site offering a wealth of information and invaluable support. I am delighted that you are now also a member. With my very best regards, Lily77

Enya2010 profile image
Enya2010 in reply to Lily77

Bless you thank you it means alot to me xx

GlasgowHen profile image
GlasgowHen

Hi, welcome and really glad you found your way here. Hope you find it to be a supportive place to be

Enya2010 profile image
Enya2010 in reply to GlasgowHen

Me too thank you for replying it means a lot

Han41 profile image
Han41

Hi Enya

I'm 42 was diagnosed with SEL last year and now have lupus hepatitis x

Enya2010 profile image
Enya2010

Oh bless you it sucks xx

Swimming234_ profile image
Swimming234_

Hi , my name is Roberta, I'm 40years old. I'm also looking for a friend with similar condition. I was diagnosed with SLE 5years ago, since diagnosed I have had lots of joint pains and fatigue and lost few friends. it has not been easy and has been a very lonely experience.

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