Muscle pain and weakness: Hi, has anyone had... - LUPUS UK

LUPUS UK

32,241 members28,596 posts

Muscle pain and weakness

20 Replies

Hi, has anyone had symptoms of muscle pain and weakness in arms and legs? I've had a few mild episodes since December last year but yesterday things escalated and I'm in quite a lot of discomfort.

It started with not feeling my legs properly and weakness going up and down the stairs, my arms were also affected but not as bad. As the day wore on my whole body started to ache and the muscles between my shoulders were also hurting.

This morning and all today I feel like I've run a marathon or been to the gym. My leg (thigh) muscles are particularly painful and walking is uncomfortable and still weak although not as weak as yesterday.

Any help and advice appreciated, should I see GP or wait and see if it settles?

20 Replies
November90 profile image
November90

I had the same a few days ago, quite randomly, and when I woke up in the morning it was like my legs were so heavy that they wouldn't move - it was really weird! But it got gradually OK again over a few days, without doing anything in particular - I hope it is the same for you too.

in reply toNovember90

Hi thanks, yes I've had the heavy leg sensation a few times (along with other leg symptoms in a previous post), it's very strange but always wears off eventually. I was wondering if it might be fibromyalgia?

KayHimm profile image
KayHimm

Don’t wait. They need to run tests to see in there is inflammation in your muscles. Keep us posted.

K

in reply toKayHimm

Hi KayHimm thanks, I will make appointment to see GP. I have mentioned it to my Rheumatologist twice but they have not offered testing.

I've also had an episode where I had the kettle in my hand and dropped it because of sudden weakness in my arm and sometimes it hurts to hold a hairdryer up to dry my hair but these symptoms come and go?

KayHimm profile image
KayHimm in reply to

Did you mention to your rheumatologist that you have trouble holding a hairdryer? Good to see GP. They can assess or contact your rheumatologist if necessary.

in reply toKayHimm

I mentioned the kettle but the hairdryer hadn't happened at that point. He asked me if I had any trouble swallowing but then said nothing after that.

Penelope-Mary profile image
Penelope-Mary in reply to

Hi Happy43

As you were asked if you had trouble swallowing your doctor could be thinking myositis which can be diagnosed by a blood test - CK.

I’ve had it for years on and off and at times it rules my life so I feel for you.

Do tell your rheumatologist, it needs to be acknowledged . Treatment can vary depending on what you are already on. All the very best 🌸🌸🌸

in reply toPenelope-Mary

Hi thank you that is really helpful. I am going to ring the Rheumatology helpline today and tell them what is happening.

😊

Penelope-Mary profile image
Penelope-Mary in reply to

💛💛💛

Meg52 profile image
Meg52 in reply to

I get weakness in my arms and legs. I haven’t been able to use an hairdryer and brush properly for years. I find it easier to use a hot air roller brush to dry my hair, I can use one arm and keep swopping the roller brush between alternate arms. The rheumatologist thinks I have a problem with my tendons. I also have fibromyalgia so never quite sure what causes it.

in reply toMeg52

Hi that's a good idea thanks. Can I ask how did you get a diagnosis of Fibromyalgia?

Meg52 profile image
Meg52 in reply toMeg52

I was diagnosed a long time ago by a pain consultant. At the time I was diagnosed with non articular rheumatism and myofascial pain syndrome which over the years was changed to fibromyalgia. He gave me zopiclone to help sleep, capsicum cream and medication for pain.

Fennella02 profile image
Fennella02

I get this. Sometimes I can’t stabilise my legs nor use my upper arms to grate cheese/slice bread. My legs often feel like mush but it’s all linked to flares in my case. My respiratory muscles also suffer

in reply toFennella02

I think I might be in a flare also. I was out with my family last Friday and the weather was very hot. Despite all the right precautions I started to feel unwell with over heating and we had to come home. I've felt unwell since then. Maybe that's it.

I do get what I call juddery breathing in sometimes, like I can't catch my breath which happens when I'm fatigued.

Wales-uk84 profile image
Wales-uk84

Hi sorry your feelingso sore, I've had the same problems for along time now I normally see my gp and get diazepam to help me with it till it passes. Hope you get some help with this sending hugs.

in reply toWales-uk84

Hi thank you that's very kind. Fairly new to this, still getting used to all these symptoms. What a horrible disease this is 😔

Wales-uk84 profile image
Wales-uk84 in reply to

Yes it is horrible but you will get to no your body and will feel when you have a flare coming on so you will no to rest, school holidays are the hardest part of it as it's so hard to keep kids happy I'm so sick of my youngest child saying that I don't play with him and I done like him because I don't like him cuddled up on me because it hurts so much, this illness just makes life so hard.

in reply toWales-uk84

I'm sorry that must be hard for you. My children are 13 and 18 now so at least I don't have as much to do now.

I'm sure your children know they are loved. Sending hugs back to you. X

Ebaymama profile image
Ebaymama

When I was diagnosed with Fibromyalgia ( 10 years ago), I did not believe my doctor.:) the thought of a lifetime illness of pain was scary! I was given every blood test under the sun, full body work up from muscle tests to colonoscopy to scans plus meeting with psychiatrist and psychologist. Once it all pointed that I was healthy overall but had Fibromyalgia the journey began. I felt this method was a very precise way to rule out everything else. Focus on the positive and never ever give up! Best of Luck to You.!! Happy to visit with you anytime about it!

in reply toEbaymama

Hi Ebaymama thanks for sharing your experience. Hope you are keeping well.

😊

Not what you're looking for?

You may also like...

Muscle weakness

My legs muscles mainly have been really weak , heavy , hard to go up the stairs up hilly road have...
Melaxx profile image

Muscle weakness

The last couple days I've experienced muscle weakness in my legs and it scares me. I will be...
Judylynne profile image

UCTD/Lupus Muscle Weakness and Bone Pain

Hi There! I was just wondering if anyone had experienced similar symptoms. I seem to have a mix of...
Hnewman2 profile image

muscle cramps with leflunomide?

Hi my rheumy started me on Leflunomide in November along with my methotrexate. Ihave had muscle...
kate47 profile image

Muscle wasting on Hydroxychloroqine

Hi, community. I have lupus, Raynauds & erythromelagia. I haven't posted for ages but I've been...
skylark15 profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.