Results ❤️ so far

[Buckley123]

Ace levels high

Brain mri still inflamed but stable

Nerve test negative so it’s just inflamed muscles

Anyone have higher ace levels ? Xx

[Roarah]

Elevated ACE is often seen in sarcoidosis.

[Buckley123 in reply to Roarah]

My neurologist is a sarcoidosis expert and he said when he first see my that it definitely was not sarc in my brain .

Today he said maybe sarc but most likely uctd so confusing xx

[Roarah in reply to Buckley123]

You can have a mix of things but it is good news that things are stable rather than worse. Keep searching but be happy it has not gotten worse at this time. Xo

[Buckley123 in reply to Roarah]

Yes this is true lucky to get results today too I had mri then went to see dr Kidd for a prescription and he had my mri there already xx

[MEGS53 in reply to Buckley123]

Hi. Happy to hear you got your results so quickly and that the MRI shows nothing progressive going on in your brain. Do you think UCTD with sarcoidosis is a valid dx? Do try to stop worrying now that this is over - easier said than done, I know. Take care of you. xxx

[Buckley123 in reply to MEGS53]

I think it’s possible just pleased to be believed by doctors.

When I go to guys and they do all the bloods I guess I will know more xxz

[MEGS53 in reply to Buckley123]

Ah, when do you go to Guys? xxx

[Buckley123 in reply to MEGS53]

27th of August 🙌🏻

What about you how are you getting on ? Xx

[MEGS53 in reply to Buckley123]

Not long for you to wait then. I see my rheumy for review next week as she'll have all my results by then. xxx

[Buckley123 in reply to MEGS53]

Let me know how you get on xx

[MEGS53 in reply to Buckley123]

will do. xxx