👋 hello

[Jj81]

Hi I’m Joanne and I joined due to just getting a lupus diagnosis 👎 reading that other people are going through similar and worse than myself made me feel less alone so THANK YOU 😊

[Melba1]

Hello! So sorry to hear you’ve been diagnosed with lupus, but welcome! This is a lovely friendly group with lots of people to help if things get tough (or just make you feel less alone with some of the strange symptoms we all can get!). Have you started treatment and got good medical support? X

[Jj81 in reply to Melba1]

Hello Melba.. I’ve just started on Hydroxychloroquine but so far it’s making me feel shocking! It’s taken a long time for the doctor’s to decide what’s wrong with me but now they have their been supportive x

[Crazy_Cat_Woman]

Hello Joanne - welcome to the group xxx

[Jj81 in reply to Crazy_Cat_Woman]

Than you 👋 xx

[Krazykat26]

Hi JJ n welcome 💐

Sorry to hear you've got lupus but be assured that u have definitely come to the right place!!

U will learn about all things 'lupie' which will equip u for the future..living with rather than suffering from lupus hopefully!!

This is a fabulous forum n there r loads of us..U R NOT ALONE!! 🤗🤗Xx

[Paul_Howard Partner LUPUS UK]

Hi Jj81 ,

Welcome to the LUPUS UK Community Forum. I am glad that you have found us following your diagnosis and that you are feeling less alone as a result.

Has it been a long journey to your diagnosis or did it happen relatively quickly after experiencing your first symptoms? Have you been started on any treatment?

If you need any information about lupus or LUPUS UK, we have a free pack which you can request or download from our website at lupusuk.org.uk/request-info...

[Jj81 in reply to Paul_Howard]

Hi Paul.. My journey has been long! For 10 years doctor’s didn’t know what was wrong with me but two years ago I got the rash and finally got a diagnosis that fit everything I’d been through health wise. I’ve also got fibromyalgia and I’m hyper mobile and have Raynaud.. I think anyone with these types of illness’s finds it hard to get answers as to why were ill all the time hey.