Bruising

[Shellys22]

Random bruises spear on joints of toes they don't hurt go away then come back any ideas

[SRiley]

Just wondered if it might be Raynauds rather than bruising if it isn’t sore and it comes and go? My Raynauds looks like bruises on my toes- when My husband first noticed it, he thought I’d banged my toes on something! Do you notice the bruises when your feet are cold?

[Shellys22 in reply to SRiley]

I do have raynards feet normally all blue. Never had bruises like that on toes befor am new to raynards

[EOLHPC]

Looks kind of like what rheumatology calls my ‘paroxysmal haematomas’. I’ve had these tissue bleeds for decades...all my adult life. I’m 65.

I have simultaneous raynauds + erythromelalgia but these are not causing my tissue bleeds. I also have small vessel vasculitis, but no medic has suggested this is causing these particular bleeds

My version of this suddenly happens to my feet (toes mostly) & hands + other parts of my body due to my hypermobile ehlers danlos (hEDS) we think. In my case these aren’t like normal bruises because these tissue bleeds happen without my being properly bumped or injured. The bleeds just spontaneously occur out of the blue seemingly for no good reason: first i feel a kind of prickly burning, then the area goes stippled with tiny bright pink spots, meanwhile the area begins to swell + feel more sore while the spots merge into a pink mass, and then the purple of the bleed itself spreads in the area affected. They do hurt quite a lot and make using my hand or foot painful for a few hours. Then they sort of settle down to painlessness...and fade away over a few days (can take up to a week +)

There is a version of tissue bleed that mainly affects the hands called Achenbach’s Syndrome, but because i have hEDS & mine are as much in my feet as my hands + i do get spontaneous bruising any place in my bod, we just call mine hEDS paroxysmal haematomas

Hope you figure out what’s causing your version of this...eg is your blood platelets count low?

Anyway, here are some links that explain more:

ncbi.nlm.nih.gov/pubmed/155...

en.m.wikipedia.org/wiki/Par...

sciencedirect.com/science/a...

Hope something in there is useful 🍀🍀🍀🍀 Coco

[Boudica1 in reply to EOLHPC]

Hi hope you are keeping well.

This post has reminded me to report strange bruises to dermatologist and rheumatologist.

Mine are happening on arms and legs and start off as if someone has been dabbing me with a black marker pen, starts with a prickly sensation and I can literally watch them appear. They're tender to touch and grow to about an inch across takes about 3 days before they start to look like a normal bruise.

Strange little blighters, my daughter witnessed one crop appear on my forearm by magic her eyes nearly came out on of her head. I think she's starting to get used to the oddities with my skin now, unless it does something else.

[EOLHPC in reply to Boudica1]

Thanks...you know how it is...only as well as we can be...

Hmmm...your description has me wondering whether any consultant ever mentioned purpura, petechiae, ecchymoses to you...cause my small vessel vasculitis manifests these, eg: here is something to bear in mind:

en.m.wikipedia.org/wiki/Pur...

mayoclinic.org/diseases-con...

[Boudica1 in reply to EOLHPC]

Not really most of it I've had to find out for myself. I know I have petechiae rashes/purpura as I have vasculitis but I must admit the little black bruises are happening more often lately. Dermatology seem more concerned about the Jessners Lymphocytic infiltration and not sure what rheumatology think as all the blood tests they have done so far are not getting the results they are looking for. They know something is going on and keep flip-flopping from one thing to another from GPA and some other vasculitis thing to SS and they keep testing for ANA but that and dsDNA are not high enough nor is the RF. God knows what they will think next time I see them but at least the appointments with them is only 6-9 monthly which is a godsend as having to see dermatologist every 3 months with the blood tests they keep doing is a bit much at times, especially when I feel 🤢🤒☠️.

I still have a chuckle about the time last year when I nearly threw up in front of one of the rheumies, not seen a Dr move that fast in years and he was desperate to get out of the room before the contents of my stomach came up. Lol

[EOLHPC in reply to Boudica1]

OMG: that Dr had better’ve moved FAST...are you also seeing a vasculitis specialist?

Time & again i read posts saying consultants aren’t interested in these sort of ‘markings’ ...but my impression is that they actually ARE significant...they can be early indicators of disease progression etc...wish i could understand what dynamic is at play here (why consultants don’t move FASTER about these manifestations)

Hope you’ll let us know what feedback you get from your medics..

[Boudica1 in reply to EOLHPC]

According to the GP dermatology are concerned. The last Rheumy I saw was convinced it's SS but confusingly also believes whatever it is just in the skin because the blood tests are not high enough. So all the other symptoms are a puzzle at least I finally found out the cause of one of the abdominal pains is gallstones and by chance I read the GP referral letter to the surgeon and discovered I have diverticular disease along with the IBS. Would have been nice to have been told, also makes me wonder if there is anything else that they haven't mentioned. Hopefully they've been more open and honest with the surgeon otherwise we're going to have fun.

Good job I have a good sense of humour. Anyway I'm seeing dermatologist Friday and Rheumy on the 10th, Oh joy of joy that means more blood tests. I would have thought with all my symptoms and oddities these highly educated and trained dr's could come to a decision about it without a computerised lab report.

Anyway take care.

X

[EOLHPC in reply to Boudica1]

Do investigations ever stop? We always are seeing some consultant about something chronic doing something different, or something new that needs understanding, or getting used to a new treatment plan...and when do they communicate about our stuff as clearly as they really should? What a life we lead...thank goodness for this wonderful forum!

Eg i have my second 3 weekly IVIG session this week...am hoping it goes as well as session no1, but i’m told they may not give me the premeds this time cause i did so “well” DURING the infusion last time....SO am going to make SURE they know the side effects i had at home during the 3 days post-infusion AND tell them i want those premeds this time too...(those caps are just to screw this plan into my head: the memory gets worse & worse!)....doesn’t help that no matter how experienced i am + how calmly & confidently i approach this stuff, it’s still a strain! And now here i am, due to spend the rest of my 65 yr old life having these 3 weekly IVIG sessions...

Take care & good luck 🍀❤️🍀❤️

[Shellys22 in reply to EOLHPC]

I see spealist on Thursday so will tell them about it. Thanks for letting me no

[EOLHPC in reply to Shellys22]

Hope you’ll let us know what they say...

[Shellys22 in reply to EOLHPC]

Yes I will let you no

[Shellys22]

Well back from specialist they say not enough blood going to feet so wait another apointment with sum one else might have to have stents put in also have 1 stage copd along we lupus sle arthrites an all the rest ps speaclist was one horrible person rant over