My consultant believes that my symptoms indicate lupus, however, my bloods did not provide a positive ANA result. He has said that I have Sjogrens, fibromyalgia and synovitis.
I have only posted once before when I was unsure of whether or not to start taking Methotrexate. I am having a lot of pressure put on me at work and felt that if I had side effects, I may have to take sick leave. My consultant decided to try Hydroxychloroquine first and I started taking it two weeks ago.
Before i began I had been having extreme fatigue, to the extent that I was starting to nod off whilst typing reports and also twice when I was driving, which has led me to take some time off work. My main issue now is the way that my head is feeling. It feels very other-worldly and I am quite detached from everything. This makes me very anxious and three days ago led to a major panic attack. I called my rheumatology nurse and at first she told me to stop taking it and then we agreed that I would try taking it with my evening meal instead of lunch.
I used to be very active and happy, but now I am a wreck and can't even manage to do the washing up without having to rest afterwards. I don't want to stop taking the medication if I can avoid it, but am finding it so difficult to function, let alone work, whilst feeling so foggy in my head. My vision is also blurry at times, but I had a sight test last week and my eyes were apparently excellent.
I feel very isolated at the moment and am wondering if anyone else has ever experienced these effects please?
Thank you for reading!