Diagnosed.. Fibomyalgia and joint hypermobility! - LUPUS UK

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Diagnosed.. Fibomyalgia and joint hypermobility!

Jetblack1
Jetblack1
6 Replies

Well after seeing specialist I have NOT got Lupus but he's confirmed I have Fibromyalgia and joint hypermobility.. Anyone who has ither and want to give me advice it would be much appreciated, got to make some changes I know. Especially at work 😑.. I'm glad I finally know and I can try to manage it. I'll be going for physio. What meds do people find helpful for pain that don't make u feel sick or drowsy? Xx

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Weeg21

Hello, i have joint hypermobility and had alot of physio in the past for it. Can be really challenging when its causing pain but i just normally use paracetamol im not allowed ibuprofen due to stomach issues and i find putting an ice pack on my knees helpful when they are swollen and in pain. Hope this helps and you find some relief soon x

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Jetblack1
Jetblack1
in reply to Weeg21

Thank you that's helpful to know.. Its hard to know which is causing the pain or if a combination of both fibomyalgia and hypermobility. Every joint the doctor touch was sore. I'll get there eventually 🙂

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Weeg21
Weeg21
in reply to Jetblack1

Your welcome ive had joint hypermobility since 8 got told it was growing pains still had them after it should of stopped its pretty tough going sometimes but just gotta keep going i guess.

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Jetblack1
Jetblack1
in reply to Weeg21

Yep u can ither let it get u or u put up and carry on.. I guess I will have my down days where the pain gets to me but I'll cope. There's people worse off..

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Weeg21
Weeg21
in reply to Jetblack1

So very true!

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Lmr83

Me too just got this exact diagnosis yesterday!

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