New here to the site and I am in Canada. Diagnosed this spring. I am looking to connect with someone who has the same grouping of autoimmune illnesses.
Anyone have Addison's, Lupus, Hashimoto"s and Sjo... - LUPUS UK
Anyone have Addison's, Lupus, Hashimoto"s and Sjogren's?
Welcome lupusandaddisons
Is there a particular reason for looking for others with that specific combination of diagnoses? From my time here, it seems that the majority of forum members have combinations of diagnoses, but with many overlaps and areas of diagnostic uncertainty. It seems to be the norm that at any one time, we will have 'provisional' or contested diagnoses and be in a state of continual review and 'updating'! For example, I was intially diagnosed with 'UCTD and Interstitial Lung Disease/?Sjogrens'. Shortly after, the label 'Overlap Syndrome' was added. A year on, 'Fibromyalgia' and this year, adrenal insufficiency and polymyositis. At my review this week, my rheumy speculated that I might have a primary auto-immune adrenal damage. My bloods recently showed up a weak positive for lupus antibodies (anti-dsDNA) and persistently elevated TSH and anti-thyroid..... You may find that this is not an uncommon pattern.
in any case, I hope you will keep posting and find the forum useful x
Thanks! Even that bit of info helps. These are muddy waters indeed.
I have so far got Sjögren’s and Hashimoto’s of your 4 and have a friend with all 3 other than Lupus. I was previously diagnosed with RA and I agree with Whisperit that there is so much overlap and also would say that more autoimmune diseases can come along like buses.
So welcome to the muddy, but extremely supportive pond!
Thanks a bunch!