Tacrolimus?

[patient165]

Lupus 15+ years. Chloroquine, Cellcept, Azathioprine, one dose of Rituximab. Now starting on Tacrolimus but worried about long term. Anyone else?

[IMWilson]

have had Lupus for 28 years and been on Tacrolimus for about 8 years. 2mg in the morning and 1.5mg at night. I take it under the brand name Prograf and was advised to stay on the same brand and not change around. I have had no problems at all and just get a blood test every 3 months at the clinic to check my "tac levels". Good luck

[patient165 in reply to IMWilson]

Thanks for the reply. So far so good. Was having my levels checked fortnightly but monthly as of this week. None of the scary side effects described in the box!