Protopic tacrolimus ointment

[Shann07]

Hi everyone

Ive been prescribed this for my lupus rash on my face. Has anyone ever tried this before? It seems a pretty strong ointment, cant drink alcohol etc, so just wondering has anyone else used this and has it worked 🙂

[Sevenstar]

Hi there, I have very bad eczema and I was actually on the trial of Tacrolimus years ago now , it helped me wean myself off topical steroids! Only last week my eczema and Lupus rashes flared up I think because if the hot weather and I've been prescribed it once again , first few days on the lower dose 0.3 and then up to 0.5 , the reason for this that it can make your skin red and hot (one of the reasons for no alcohol as that might make you flush more ) , this does not last long as your skin gets used to it ! It really helps !

By the way , I do have a couple of drinks now that I'm acclimatised!

Hope it goes well !

[Shann07 in reply to Sevenstar]

Hello Sevenstar1 thank you for replying 😀 great that it has worked for you. How long before I should notice an improvement...my rash is classic butterfly shape, red and scaly, its there almost a year, so Im just started on Azathioprine and this ointment. I will defo avoid alcohol while using it lol, glad you dont react with a few beverages! Really hoping it heals soon xx

[Sevenstar in reply to Shann07]

Well it's a long time ago and in those days I took it for eczema so it worked quite quickly, but everyone is different! This time I've only been taking it since Saturday so I'll keep you posted !

[Shann07 in reply to Sevenstar]

Ahh yes keep me posted....Im gonna start mine at the weekend cos Im having drinks Friday night and dont want my face to glow like a tomatoe on my first night out since lockdown 🤣

[Joaclp]

I use tacrolimus for other autoimmune rashes--I don't have lupus-- and helps me a lot. I even use it in my mouth, where it causes some burning but clears up lesions! I have an occasional glass of wine, because it helps me relax. You can try it and stop, if yu have problems.

[Shann07 in reply to Joaclp]

Hi Joaclp! Thanks for replying 😊 So reassuring to hear your positive experience of using this, Im so glad it works well for you, especially inside your mouth .....ouch 😖 Defo gonna give it a try xx

[Tiggywoos]

Hi Shanno07Having used this before if I was you I would try the tiniest bit on one part of the rash . It works very well but just to warn you it does feel like you are on fire for a good few hours and it makes you itch .

I would apply it in the morning then by the evening the itch should be gone so there’s no risk of scratching in bed and getting the skin infected xxx

[Barbara17]

Hello. I’ve used Tacrolimus ointment on my face for scle. It’s ‘kinder’ than dermovate. It stings like mad for the first few days but you do become accustomed to it and I think it does work,

[Shann07 in reply to Barbara17]

Hi Barbara17 glad its worked for you! Does it take long before there’s an improvment?

[Barbara17]

Scle is notoriously slow to clear but I did see a gradual improvement and I’m happy to say my face is clear at the moment,

[Shann07 in reply to Barbara17]

Hopefully my rash will clear soon too 😌

[Barbara17]

I’m sure it will, it just takes time and is demoralising. However a friend assured me it is far more noticeable to me than to anyone else. Another friend remarked that no one looks at old women anyway! 😂😂😂. I’ve had scle diagnosed for six years now and only had two big flares so fingers crossed that yours is under control soon too.