Subacute cultaneous lupus and inflammatory spondy... - LUPUS UK

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Subacute cultaneous lupus and inflammatory spondyloarthropathy

Comeonpeeps profile image
6 Replies

Hi all, could do with a bit of a vent, I've been on hydroxychloroquine for 2 years and it really seemed like my migraines improved on it, but I'm now starting to get them again. I'm gutted. Has this happened to anyone else?

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Comeonpeeps
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Ianrussell69 profile image
Ianrussell69

Unfortunately yes although I was thinking it was temporarily stopping methatrexate that has brought the headaches back I’ve also noticed I’ve got quite a lot of muscle wasting on my arms and they are noticeably weaker and my wife has found a article that suggests hydroxy can give you muscle wasting hope your headaches clear up so9n as I know they c@n drag you do2n

Comeonpeeps profile image
Comeonpeeps in reply to Ianrussell69

Hi Ian, thanks for the reply. Yes I've just read also that it can affect the muscles, and I do have problems with this. Today's migraine was horrible, I couldn't talk properly and understand.

Ianrussell69 profile image
Ianrussell69

Yes I know what you mean yesterday I got a migraine just bang did not know what to do with my head that just come on really quick but fortunately they go very quickly but they can be horrible I just went and sat in my van until it past hope you headaches get less intense very soon

MVJohn62 profile image
MVJohn62

My Dr. Normally changes the medications after 2 to 3 years when ever long lasting side effects pops up.

Now a days lots of other medications are available which are commonley used

Comeonpeeps profile image
Comeonpeeps in reply to MVJohn62

Hi John, I think my medication needs reviewing. My problems are either progressing or the medication isn't working as well. Waiting for my next appointment, feels like years since my last!

Asarahjohnson profile image
Asarahjohnson

My migraines settled a lot when I stopped eating gluten

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