When someone asks how your weekend has been... - LUPUS UK

LUPUS UK

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When someone asks how your weekend has been...

MsAndyIvy profile image
14 Replies

...’ Just recovering from the triathlon, auditions for Britain's Got Talent and preliminaries of Mastermind on Saturday.

Marathon and Tough Mudder on Sunday were a doddle. Got my personal best in Marathon.

Currently re- roofing the house in my bikini.

How are you? X’

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MsAndyIvy profile image
MsAndyIvy
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14 Replies
whisperit profile image
whisperit

what happens in your dreams counts, right?

MsAndyIvy profile image
MsAndyIvy in reply to whisperit

That would be an nightmare for me. Healthy or not!

kyliesinead profile image
kyliesinead

That made me giggle, so thank you. It's great to use humour, it really helps sometimes. Putting a brave face on becomes second nature, especially where kids are concerned. How was your weekend? Got up, went for a brief walk then back to bed with fatigue and a head ache. Woke up with a painful neck and it hurt my back to turn over, but as daughter was home from uni felt guilted into getting up. Bless her, she had made the tea. Could have kissed her, instead I smiled and said I felt a lot better after a sleep. Next day was spent trying to deny I was tired and trying to keep irritation at bay. Daughter dropped at station then straight back to bed for me. Rock and roll!

We just have to grab those good days when they happen and all the little things that make life bearable.

MsAndyIvy profile image
MsAndyIvy in reply to kyliesinead

So true.

I don’t put my makeup on some days so people can see how ill I am and I’ll sacrifice 3 days in bed for a normal Sunday afternoon with the family.

I’d suffer in silence but I keep letting out the odd yelp of pain! I’m sure trying to keep a front on adds to stress. When I let go when no one is about it’s lovely ... but painful and my jerks are hysterical.

Oh to put my glad rags on, go into town for a meal and cocktails and stagger home on last train.

HeKe profile image
HeKe

Got up, walked the dog just a little too far, spent the rest of the weekend in bed through overdoing it. This time last year I returned from a 10 day business trip in UAE and Malaysia, loaded up my horse, went off on a three day training camp where I slept across the front seats of my horse box, jumped endless fences, returned home ready for work on Monday morning. Please tell me my energy will return.

MsAndyIvy profile image
MsAndyIvy in reply to HeKe

Wow- what a fab experience!

All the hard work of my career seems very distant now and it’s only been 3 months.

Worst is I feel like I have let people down so much. I’m an headteacher- Ofsted was due, they came and the school got good. I was at home... Ill and undiagnosed. If I'd been there we would have got Outstanding. Gutted tbh.

But look on the bright side... I appreciate life much, much more and now have my priorities right.

HeKe profile image
HeKe in reply to MsAndyIvy

I worked in education too (publishing and most recently exam board ). I took early retirement in September and the symptoms ramped up from October.

kyliesinead profile image
kyliesinead

I was a teacher and took early retirement nearly two years ago. Can't tell you how much better I feel. I just couldn't keep up with all the changes and the new technology. I felt that it was time to go but it's still frustrating.

MsAndyIvy profile image
MsAndyIvy in reply to kyliesinead

I used to love change and challenge. Now I can’t even remember to buy that white stuff you put in tea... oh yeah, milk!

kyliesinead profile image
kyliesinead

Exactly. So many embarrassing moments in teaching when I forgot to do important stuff. Like you I loved a challenge and used to be on the ball. Now I can get half way through a film before I realise I've seen it before x

MsAndyIvy profile image
MsAndyIvy in reply to kyliesinead

It’s sad.

HeKe profile image
HeKe

Sorry, I didn't reply very fully earlier. I was waiting to attend my first rheumatology appointment. Are you blaming yourself for your school not getting outstanding in the OFSTED inspection? Getting good is great! Your leadership took them there. You're probably right. If you had been there, they may have got outstanding, but good is still great! My daughter is looking for a primary school for my granddaughter. Whilst the OFSTED rating is important, the ethos and ambience is of equal importance. They're favouring a good rather than outstanding school for my granddaughter. Don't be beating yourself up - you're probably in enough pain already 😂.

kyliesinead profile image
kyliesinead in reply to HeKe

I couldn't agree with you more. X

MsAndyIvy profile image
MsAndyIvy

Thanks ladies. Bit at a loss in life at the moment really. Trying to keep upbeat and the facade intact when in fact I’m in pieces- MR scan finally showed up apart from some spine degeneration there’s a couple of anomalies in my brain 🧠. So the Dr who asked if it was ‘all in my head’ could probably be right! 😂😂

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