What to do for mouth sores related to lupus
Lupus: What to do for mouth sores related to lupus - LUPUS UK
Lupus
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Hi there , i have Sjögrens and i have been getting alot of very painful mouth ulcers lately. I told tthe rheumy nerse and she suggested Manuka honey 18 + to dab straight on ulcer . I haven’t tried it yet but Holland and barrett hsve some on 1/2 price at moment as is expensive . I hope this helps 🌺
Hi saw your post on lupus site, I'm on the NRAS site, but have suffered from mouth ulcers for some time.
I have used all of the following in an effort to clear them up.
Corsadyl mouthwash ( generic is chlorhexidine gluconate - cheaper)
Salt water gargle
Difflam spray ( prescription pain killer - direct spray on mouth area )
Bonjela (adult version - gel rubbed on ulcer )
Anbesol (similar to bonjela but stronger )
Out of all these the most effective for me was anbesol, but the mouth washes helped in short term.
If the ulcers persist please see your GP as they can be a sign of something else. I was eventually referred to my local hospital maxillofacial department where they took a biopsy, turned out just a nasty bout. Apparently 'some people are prone to this' !!!
No problems now but since I suffered on and off with mouth ulcers since I was a child I fully expect them to recur. Hope yours clear up soon.
Chris_0
Hi chris , i have also used all of the above! My white cell count is low so im prone to bouts . I have only just cleared up from last bout , if it does happen again I will try the Manuka honey as i only heard about it on Thursday. I hope you stay ulcer free , best wishes 🌸
Thanks everyone I will try this,my entire mouth is covered in these sores
Hi
I have a degree in oral health science and can help
Try not to use chlorhexadine ( corsodyl) it stains your teeth brown.
Try:
Gengigel comes in gel or mouthwash very good stuff
Difflam - won’t heal it but will numb your mouth
Peroxyl mouthwash - will heal and is good stuff and won’t stain your teeth.
Anbesol or Bonjella gel
Salt water
I’d personal try the gengigel £7.95 in boots.
I would also get blood tests to check your B12&6 levels. Zinc and for anaemia
Good luck. X
That is great info ! Do you have any suggestions for thrush as well ? I have have had bouts after biologic treatment , it seems to be a common problem ☹️
Hi
Is it oral thrush you have? If so the dactarin gel is good. You can buy this over the counter for less than £5. Or a dentist or dr can prescribe you nystatin.
X
Thanks i have had it afew times . I found nystatin brought me out in a rash. I have used the dactarin gel but can take ages to clear .
I hope you dont mind me asking this, but as you said you are experienced with this thought it was worth a shot.
I have just been tested for srojens, after struggling with dry eyes, dry nose and mouth for some time, my mouth at the moment feels strange no amount of fluid takes the dry feeling away. it is hard to describe how it is, i dont have ulcers, my mouth feels really sensitive to spicy foods etc also.
Many thanks
Jane
p.s. I have had lichen planus in the past many years ago, i did notice spots on my feet recently as well
hummmmmm...your lichen planus caught my attention....I had it also, so my dermatologist said.......Then I got the rash to top all rashes..had it biopsied and that is when /how I found out I have Lupus....maybe my dermatologist didn't consider Lupus because of my age??
I had an alleric reaction to something years ago, i was covered from head to toe in lumps and bumps which then left a blistered rash behind, it took weeks to settle down, and weeks for my swollen feet to get back into shoes. After that my mouth was so sore and an itchy rash just kept appearing, after 6 months my mum offered to pay private, and five minutes with a dermatologist he said it was lichen planus and prescribed steroids.
I have not been diagnosed with Lupus, but was informed by a rheomotologist that I had Lupus symptoms
20 years on I am not much further, other than chronic hypermobility and more recently fibromyalgia. I told them I think it is just an off shoot from the hypermobility which has never been treated or managed properly.
I am 51 when I was 30 I had an abscess wrapped around my parotid gland, which was surgically removed, but no investigation as to the cause.
Are You taking medication for Sjogrens?? Or have your results not come back..I'm unclear on that...Well, I am all for getting wild rashes biopsied... I really think my" lichen planus" was Lupus I am 62..."an old white female" my Rheumy told me...in this case though, being old(er) at DX is to my advantage...I am goint to have to look up parotid gland...maybe I better not, I am very suggestive and will think something is wrong why my gland!! can we say Hypochondriac?? lolxx
I’ve had a bad spate of mouth ulcers all over my tongue and elsewhere following a heavy cold. I have Sjögren’s and I use Salivex pastels and oralieve gel daily. But I had a few days where my tongue was too sore for these so I used Manuka honey instead. It seems to have worked well for all but a few persistent offenders.
I always use Peroxyl when I get them. It’s a mouthwash made by Colgate, and works wonders for me. Good luck! I know how miserable they are.
I use Difflam mouthwash when ulcers pop up, prescribed for me but you can buy it over the counter. I bought the spray and the dental hospital prescribed Difflam wash, much better than Bonjela
Aloe vera good for cold sores.
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Hi Berm ,
We published a blog article last year which has lots of helpful information and tips for managing mouth sores. You can read it at lupusuk.org.uk/coping-with-...
Hi,
My Rheumy said the ulcers were due to lowered blood counts caused by meds. He prescribed Folic Acid and they worked great! The ulcers were very bad but cleared up within a week of starting the Folic Acid rx and I haven't had any since
Hope this helps!