One benefit for those who suffer from SLE: - LUPUS UK

LUPUS UK

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One benefit for those who suffer from SLE:

11 Replies

Hydroxychloroquine protects us from malaria. So we have that going for us

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11 Replies
Ianrussell69 profile image
Ianrussell69

Yes and methatrexate nearly kills us ! Sorry slightly bitter sepcis last yr and a fistular 1 month ago so been taken off it for 12 months

in reply to Ianrussell69

Great. Our immune systems take a beating

in reply to Ianrussell69

Men aren’t even supposed to get lupus!

Ianrussell69 profile image
Ianrussell69

Yes I know told I had lupus 18 months ago got new consultant now I've got uctd Meds are the same fatigue the same ?

leslieliesel profile image
leslieliesel

Oh YEA!! Time to take a trip where Malaria would get us if not for Lupus..hahah

DonnyJM profile image
DonnyJM

Actually that’s not true. I had thought and heard the same.

Maybe once upon a time it did but earlier this year I traveled to Africa and was told be an Infectious Diseases Consultant that it has no benefit as an anti malarial even though it is from the same family.

I had to buy another drug and it wasn’t cheap either.

in reply to DonnyJM

I went to Haiti and they said it works! What the crap?

DonnyJM profile image
DonnyJM in reply to

Who knows then?

baekhyunkitti profile image
baekhyunkitti in reply to DonnyJM

maybe they just wanted you to spend more money on the new drug? :p

in reply to baekhyunkitti

It’s not like you to be cynical. :)

Alex97 profile image
Alex97

I had Steven Johnson syndrome from Hydroxychloroquine so not a good med for me!

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