HRT with SLE

[primrose9]

Hi everyone, I've recently had a hysterectomy and been suffering terrible menopausal symptoms. I'm considering HRT but have been told it's risky in SLE patients. Any members here going through something similar and able to offer any advice would be gratefully appreciated

[tremarel]

No worries with lupus & HRT I've been on it 21 years . Lupus coming up 40 years with kidney transplant . I couldn't live without HRT. Hope this is of help to you. X

[Haircut72]

Hiya I’ve been on HRT for over 20 yrs because of endometriosis had 80 operations for it all private as insurerd with Bupa had a full hysterectomy 3 yrs a go due to cancer I’ve had lupus for nearly a year now and On drugs for the lupus I’ve had no problem with being on it with my hrt hope that helps u can all ways message me with any questions u may have

[Bacardibabe76]

Hi

I think it’s a problem if you have antiphospholipid antibodies. Other than that I am not sure.

Good luck

L x

[nanleighh]

I'm on it and cannot do without! As bacardibabe said its only risky if you have anti phospholipid syndrome. It helps with my brain fog as well as other symptoms. I hope you find something that makes you feel better!

[corrie14]

hi overy and part of the other removed. because of endometriosis, after taking 3 bouts of chest pain non cardiac docs said i wasnit to take hrt ,

[SjogiBear]

Hi there - I had a hysterectomy done 4 years ago now because of chronic anaemia, endometrial cysts and fibroids and was told to steer clear of HRT. I do have antiphospholipid antibody syndrome though. It was tough for the first three or four months but then things settled for me and my body found its new normal. I don't feel as though I'm missing out on something but of course everyone is different.

[milkwoman]

I have SLE and have tested positive for some of the APS autoantibodies (no formal DX since I've not had an "event").

I've been on HRT since last November with no issues. I'm on a twice weekly estrogen patch and daily oral progesterone. (I was also on transdermal testosterone but had to stop since my levels went high very quickly (must be ultra sensitive) which resulted in me feeling very irritable all the time). Aside from that hiccup, which resolved itself by stopping the testosterone, HRT has helped me tremendously.

[primrose9]

Thank you all for taking the time to respond. Greatly appreciated xx

[Paul_Howard Partner LUPUS UK]

Hi primrose9 ,

It is important that you discuss the possibility of HRT with your lupus consultant because they will want to weigh up the potential risks and benefits and make you aware of them. HRT is sometimes given to treat osteoporosis in post menopausal women with lupus, but it can increase the risk of cardiovascular health problems (especially in those with antiphospholipid antibodies).