Lupus isn't me...: .. though I seem to have lupus... - LUPUS UK

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Lupus isn't me...

kaw86 profile image
8 Replies

.. though I seem to have lupus separate personality.

Why is everything such a struggle? DLA... ESA... Life.....

I thought in my 20 somethings I'd get it together get a career and possibly be a house owner before I hit 30.

I'm sorry today I got my period and I feel wiped out and the Rash on my chest has spread across my breasts. I'm still waiting for Jobseekers to come through and my letter from St Thomas's and Guy's Hospital. And my GP just said go meditate lol. I suppose he has a point.. I get soo anxious!

On a good note might have a venue sorted for my cupcake and tea/ swap party for Lupus! Hurrah!

( Back to my Illustration stuff..)

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kaw86
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8 Replies
SueHughes profile image
SueHughes

Hi sorry you are having a bad time,people dont make life easy for people that are ill.Hope you feel better soon,Sue xx

SueHughes profile image
SueHughes

Cupcake and Tea party sounds yummy,would come but bet we are miles apart,I am in Devon.Sue xx.

janiceray profile image
janiceray

I want that cup cake please!!!!

Hope you will be better soon

largesse profile image
largesse

Know what you mean. Daughter has lupus - just turned 20 - and her hopes for a career have been put on hold. Chin up and just keep going we are all here to support you xx

Thaddeus profile image
Thaddeus

Hello Kaw

Yep, your life has changed and you will have to fall in line with it.

Lupus is bigger than you and you cannot hope to fight it head on.

You will get your life back one day, your dreams and ambitions will have been moderated and you will be the wiser for it.

Cup cakes sound good, tell us where and when.

Hi Kaw,,,hey there will be better days ahead!Please keep that strong Lupie spirit up and hang on the the sunshine.x

junbuggi profile image
junbuggi

Hi Kaw, it can take a while to accept and adapt to everything..and it's constantly changing. Hang in there. Look for moments of joy, moments of peace.

kaw86 profile image
kaw86

All of you are great!! :) I think positiveness and relaxation is the key in this! I have some good news which i'm gonna put up in a new blog! :D xxx

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