I had my second appointment with the rheumatologist yesterday and I'm a little further forward with diagnosis.
Because of my great response to the steroid injection (and the crash after it wore off!) he is convinced it is an inflammatory condition and has taken his back up diagnosis of hyper mobility off the table. We are now left with either RA or multi system connective tissue disorder.
Sadly for some reason he did not have the results from the auto antibody tests run last time round, annoying for both of us! So we need to wait for those to be redone before starting treatment.
Meanwhile I got another miracle steroid injection, hoping I have the same benefit second time around!
After 18 years of no answers the treatment I am now receiving is better than I could have hoped for! I feel so lucky to have finally stumbled upon the right doctor (and GP who agreed the referral) as I have gathered from reading posts on this forum, sometimes that's half the problem!