Hearing loss

[Rubylu]

Have any of you experienced hearing loss with your Lupus or CTD?

I had my follow up yesterday and mine has declined by a further 15%. My disease has been very active over the past year. Including these changes.

What's your experience?

[roony13]

Hi my hearing loss was attributed to lupus. I have lost much of my middle range of hearing and use hearing aids which are great.

[Rubylu in reply to roony13]

Hi roony13, I've worn aids since 2005. It was originally attributed to a neurological disorder, but has got worse since my big Lupus flare last year. I expect there's a degree of age related changes too, but I was just interested if other Lupies have had problems too.

I hope yours doesn't deteriorate.

[dgleds]

Actually that was what made them(GP) think i had lupus...One of the first things happened was my hearing doing strange things...Im suppose to have mild lupus and off meds now, but today i went for a walk and it was sunny, and that hearing thing happened again (I have a new doctor and she doesnt seem to read my past history much) I tell her what happened and she goes, SO...Rhumey use to tell me all kinds of strange things will come and go, but now im off meds (my doing)...Im not under his care anymore...I think if things got bad i just go to emerg....