Lymph node anatomy: My lymph nodes have been... - LUPUS UK

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Lymph node anatomy

Sheole profile image
10 Replies

My lymph nodes have been swollen & sore. After an u/s they concluded cortex & fatty helium is missing on some nodes. They are ''following'' them & going to repeat ultra sound in 2 months. I'm finding this challenging & wanting to know if others have had this issue? Thank you.

10 Replies

Sorry you are having this issue. I haven't had this symptom myself but I do have my lymph nodes checked by my dentist, oral consultant and rheumatologist now at every appointment because I have primary Sjogren's. It used to just be my joints that were of interest when I was previously misdiagnosed with RA.

Sheole profile image
Sheole in reply to

Thanks for your response.

in reply to Sheole

You're welcome. I know a bit about this because, although the risk is still relatively small, people with seropositive primary Sjögren's are 44 times higher risk of developing non Hodgkins Lymphoma than the general population - which is why they often aren't put on immune suppressants. However the type of Lymphoma (Malt) is usually very treatable if caught in time, treated (usually with Rituximab) and well monitored.

Sheole profile image
Sheole in reply to

Thanks for your response. Good to hear it is treatable. I read where Sjogrens does increase chance of this type of Lymphoma. I freaked closed the lap top. 🙂 As fearfull. Now I feel better.

1985mum profile image
1985mum

The absence of the cortex and hilum can sometimes indicate malignancy which I guess is why they are "following" them, to rule this out.

Sheole profile image
Sheole in reply to 1985mum

Yes I guess that is why. But I want answers now. Thank you for your response.

weathervane profile image
weathervane

Hi sheole , i was diagnosed with primary sjogrens about 18 months ago . I had symptoms for years before that but all came to a head when my lymph nodes all became enlarged and i felt very ill as i had a constant flare . I had scans and a biopsy before i was eventually referred to rheumatologist who made the diagnosis. I was started on hydroxy with a bit of success but lymph nodes remain enlarged, ithe rheumy then recommended rituximab which has been successful so far , i have had 2 infusions with 3 coming up end of july . It has not cured all problems but i have more energy, lymph nodes have decreased in size and just generally feel much better. It is worrying going though all the test then waiting for results. The doctorshaven't suggested checking lymph nodes again which worrys me and im going to push for it as mylymph nodes still go up and down , also nothing was mentioned about structure of nodes at time of scan so cant comment on that . Are you on any treatment at the moment ? I hope you get some answers and start to feel better, sending you lots of positive thoughts, best wishes 🌸🌸🌸🌸🌸

Sheole profile image
Sheole in reply to weathervane

Thank you for your response.

I have seen rheumy for last couple of years. Also a pulmonary doctor. I remain undiagnosed however they strongly suspect auto immune. My Sed rate has been as low as 65 in the last couple years. However my CRP is mostly normal. That is why I'm undiagnosed. I seem to have many of the symptoms of Lupus Sle & sjorgens. They also talk vasculitis & scleroderma. Lyme to has been considered

However the lymph node issue has only popped up in the last 6 months other than that all the other symptoms are the same for the last few years.

No medication other than antinflammatories which I am now not able to take as kidney function is a bit down.

So i always say, it could be worse & try to remain positive. In time I will get answers.

You take care.

weathervane profile image
weathervane

I hope all goes well for your second ultra sound , please let us all know how you get on , best wishes xxx🌸🌸

Sheole profile image
Sheole in reply to weathervane

Thank you. Will do. 💐

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