Australia- Brisbane specialists: Hi ive just moved... - LUPUS UK

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Australia- Brisbane specialists

jp83 profile image
jp83
4 Replies

Hi ive just moved to Australia (brisbane) and was originally under Prof Khamashta at London uk. I found Prof K to be fantastic but he went on sabbatical and i was put under Dr ****** who i found ok but did not listen to me.

I was originally seronegative for APS then eventually showed positive, with borderline anti beta (??) and in the last 18 months or so I started to show very high AntiDSdna results but still negative ANA. Dr ****** said although he clinically cannot stare i have lupus he thinks i have it mildly and so put me on low dose hydroxychloroquine.

What i want to find is a specialist in brisbane who ix interested in these condiyions and is aware that seronegative is an actual thing. I want someone who is thorough and lustens.

We may wish to have another child and I will really need to plan and prepare responsibly if we do especially as I will need a cesarean section.

If anyone has any recommendations id be really grateful.

Thanks

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jp83
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4 Replies

You may find helpful answers if you also post this on the Australian Sjögren's Syndrome Association HealthUnlocked - healthunlocked.com/sjogrens... - because most of its members (some have other autoimmunity) are based in Australia and local rheumatologists are often recommended by members to each other.

jp83 profile image
jp83 in reply to

Thank you very much i will x

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi Jp83,

You can get in touch with Lupus Australia, Queensland Inc for information of a specialist in Brisbane: lupus.com.au/

We published a guide on lupus and pregnancy which you can read here: lupusuk.org.uk/wp-content/u...

Please keep us updated, all the best.

jp83 profile image
jp83 in reply to Chanpreet_Walia

Thanks thats great x

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