Since my diagnosis 5years ago, i have never travelled alone. I have always been with my mum and son. But last weekend i had an associate weekend in london which i had already bought my ticket in February. My mum tried to talk me out of the trip because of my health and the latest happenings in London and manchester. I did go eventually and i loved it. I was the youngest to attend but all the others where btw 91-48. Some had walking stick, while so could walk unaided. I walk without my stick 4 awhile but when my hip began to hurt i had to use my stick.
Towards the end of the weekend my leg was swollen and i thought it will go down by monday morning but it stayed swollen that i was unable to fit into my shoe. So i wore my indoor slippers to travel back home. The good thing was that i booked for train assistance so the staff helped me at every stop. I felt to young (31) to be using all the help but the truth remains that i really needed the help. Got back home safe but in argony my leg in a bad state, my throat is very sore. So i have put my feet up and will do so for the rest of tbe day. I have an infusion tomorrow so i will show my doctor's my leg ( the left is more swollen than the right). All in all i enjoyed the trip it was calm and refreshing.
Regards
Ijeasike xxxxx
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ijeasike
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Hi, congratulations! It takes courage to do that. I am not that young but still scared to travel alone. Your mum must be proud of you for doing that! Keep smiling as the pain and swelling will ease up soon! Take care xxx
Hello. I've loved reading your update. I bet you feel great knowing that you did it on your own too. A feeling of independence, that you can still do it. So pleased for you. Get those legs elevated and tell us what the doctors say. Have you had swollen legs before? Wendy x
Yes i had kidney issues in 2012, had cyclophosphomide 4 6months. My kidneys are under control at the moment. I equally had fluid retaintion in my ankle bcos of niefedipine. The difference in the swelling is that it flows down to my toes hence inability to wear a shoe. Am in bed and intend to remain in bed till 2mro.
Well done for coping with your weekend away!. Great achievement as you've been so poorly, does do us the world of good when we have a break despite our health and that bit of independence is so important!. Good luck tomorrow for your infusion and swollen leg, keep us posted. X
Well done! I was pretty thrilled about my day away in London, so you must be over the moon. Great news - and booking train assistance is always a good idea. Feet up, and have a well deserved rest 💐
Hi there , you have taken first step 😀My oldest is in Lincolnshire and i have to fly to Manchester then get 3-4 hour train which was hard the 1st time , also tend to do too much on the couple of days im there . I dreed it but if I want to see him i have no choice ! It takes 3-4 days to get over the pain and fatigue but it's worth it. Don't let it put you off as you have to live life to the full , best wishes 🌸🌸🌸🌸
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Can't seem to quite get my Lupus under control. 
