Hey all: Well not to good week again. Feel so... - LUPUS UK

LUPUS UK

31,729 members28,088 posts

Hey all

Clairebear profile image
3 Replies

Well not to good week again. Feel so drained and low😢. Doesn't help with the heat and running around after a 2 year old 😳. Can anyone help. Dr has got me to drop down my steroids 1mg per 4 weeks till I'm off them. I'm not sure if this is causing my problem of been tired. Anyone had the same? Hope everyone else is feeling ok.

Happy health everyone xx

Written by
Clairebear profile image
Clairebear
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Lupiknits profile image
Lupiknits

Never taken pred, so I can't help, I'm afraid. I remember running after 2 boys under 2 and wishing they had an "off" switch, though! All I can do is send a hug and suggest a check with medics x

Barnclown profile image
Barnclown

I'm with lupiknits! Am v much feeling for you! For sure the heat + caring for your little one is exhausting...and, if you're not feeling well anyway, you're bound to feel extra tired. Am glad your dr is going for a relatively slow taper...hope you don't mind a few questions:

What meds are you on other than steroids?

What steroid dose are you on now?

Why is your dr taking you off steroids?

Take care...am hoping you can grab any chance that comes along to rest up....wishing you every best wish

🍀🍀🍀🍀 coco

PMRpro profile image
PMRpro

As Coco says - how long have you been on pred, what dose were you on to start and what dose are you on now? When did you start reducing and did you go overnight from every day old dose to every day new dose? All relevant - then we can answer your question.

But to be fair - I suffered from TATT (tired all the time) syndrome when I had a 2 year old and I wasn't ill!

You may also like...

Hey all

and then and also put me on a 6 week course of steroids to try and help the current flare whilst...

Hey ! Hey ! Hip injection at last😀😀

secretary , i have an appointment for Monday to get a steroid injection for bursitis in in my hip...

Hey everyone, I’m new

been off work for 7 weeks and I’m supposed to be going back next week. I am not sure if I’m ready...

Hey guys, why can't we collate our own findings?

diagnosed with help or hinder? I am IT illiterate. Could it be done? Can just anyone do it?...

Feeling drunk all the time...

tests came out ok, I'm not taking any medications or something. please if someone can...