ACCEPTANCE : My name is Cathie. I have a number of... - LUPUS UK

LUPUS UK

32,127 members28,445 posts

ACCEPTANCE

Cmtcummins profile image
2 Replies

My name is Cathie. I have a number of inter-related debilitating medical conditions, of which SLE is the most recently diagnosed. I began Plaquenil in January, and found this blog while researching night-time itching of face and head. Thank you for the Wisdom and experience I find written in your posts. I don't feel so alone now. Let me in return, share a bit of my own wisdom .....

God

Grant me

The serenity

To accept what I cannot change:

I must accept that there is a limited time I can be on my feet in a day.

Two periods of 1/2 hour of housework

Or

Three hours of appointments

Or

A 1/2 hour walk

If I do more than this:

1) I will have a sore back this next day

2) it will provoke locked lordosis

3) then bowel function will be slowed

4) RLS symptoms will interrupt sleep

5) I will become over-tired

6) over-tired makes sleep more difficult

7) over-tired leads to eating poorly

8) Eating poorly causes brain fog

9) brain fog = poor decision making

10) poor decision making leads to being on my feet too much

To view my blog:

3160catherine.blogspot.ca/?m=1

Or my Facebook group 'EATING FREELY'

Written by
Cmtcummins profile image
Cmtcummins
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Joyandsleep profile image
Joyandsleep

You are one smart lady for you have learned to pace yourself. Thank you for your wise comment.

Joyandsleep profile image
Joyandsleep

I have restless leg syndrome too. It's so difficult even with Ropinarole to get to sleep some nights. If you have found anything that works let me know. I realize it gets worse with an iron deficiency.

Not what you're looking for?

You may also like...

February's Topic of the Month - Brain Fog (We want to hear your tips and experiences)

We will be continuing our ‘Topic of the Month’ in February by discussing, ‘Brain Fog’ Brain fog is...

SLE & 🦷

I am absolutely devastated this morning. My tooth crumbled when I was eating brown bread. I’ve had...

Is there a connection between deep (unconscious) sleep for a prolonged time and an increase in Lupus-type symptoms on waking?

I have been wondering about this....because I have discovered that if I sleep longer than 5-6...

Zopiclone - to take or not to take?

Quick question. My sleep has been atrocious for months, and now is so poor that I get about 2 hours...

Disrupted sleep

My sleep pattern has become an absolute nightmare,i seem to wake up every hour right through the...