metro.co.uk/2017/02/17/why-...
Something I found interesting and thought I would share. It's really difficult to explain to someone that you have a condition but physically there is nothing wrong. I find being young and working with a condition like lupus is really difficult as everyone assumes your healthy but really inside you can be crippling pain and you just struggle on.
It's good to see that invisble illnesses are getting recognised by the papers!
Yep totally agree. I and in conflict most of the time on trains with my husband when he asks someone to let me sit as I have an illness. They look at me in disbelief. I don't like to share, they don't believe you. However, the last time I went to my appointment at London Bridge alone I fainted on the tube because I didn't ask. I also didn't get any help. Amazing. I have also given my seat to pregnant women when others have not.
I'm scared to death that my family, friends, doctors, and the people I work with think that I'm a hypochondriac 😢 So I do my best to not show the pain or the frustration or the fear.
Its even more complex for me at time because my default position over the year is to pretend that I'm fine and carry on, this strategy got me through several years at work, until I eventually thew in the towel.
The thing is how can I expect people to understand when I spend half my time pretending im OK and handing my symptoms?
Good to see awareness raised though.
I have a new superpower
Lupus: An Invisible Monster - New LUPUS UK Video
What does it mean to be in the ESA Work Related Activity Group?
