Hello all, I'm still relatively new to the group. I have my first rheum appt on Friday and am so so nervous. I am desperate for real answers and a diagnosis that is real and I can justify why I feel thirty years older than I am. 8 have six:eleven criteria but negative bloods (which were done on steroids) and even had surgery for tendon damage. I'm just terrified they'll say no it's all in your head or something to that affect!
Meanwhile I'm really struggling with people's reactions to the suspected lupus diagnosis. People don't know what to say!! It's so surprising! Family and friends just don't want to ask further. At one point I was in a wheelchair and need hip surgery on both hips. When I bring that up people just change the subject. This is so life changing for me yet people don't want to know and I am finding that hard. I don't want to ruminate on my health but when every day you are struggling it's hard not to. Just looking for an understanding ear I guess!!