Pain... : I am in the worst pain!!! From my waist... - LUPUS UK

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Dalollies profile image
11 Replies

I am in the worst pain!!! From my waist up I feel like someone beat the crap out of me. I am also starting a migraine. Anyone with the same pain?

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Dalollies profile image
Dalollies
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11 Replies
Author_ink profile image
Author_ink

Yes I've suffered from severe migraines. Body aching like hell. Just suffered a week of severe flare-ups. Doing good now. Hot bubble baths exercise and staying strong is how I survive. I have a 6 yr old son that needs me more than lupus and refuse to give up without a fight!!! Stay strong

Dalollies profile image
Dalollies in reply toAuthor_ink

Thank you for the advise.. I have never had this muscle pain like this. It's hard to know what is related and what's not.

Author_ink profile image
Author_ink in reply toDalollies

Not sure if your pain is related to lupus. Please get medical expert.

Ianrussell69 profile image
Ianrussell69

Sorry you are having a bad time I get a lot of leg back and shoulder pain and my go put me on tramadol 10 yrs ago this is the only pain relief I have taken that has worked with no side effects ,only if I take it after 2pm I will not sleep at night and I find it hard to get more than 5 hrs anyway . It would be worth asking to try it also when mussel pain is very bad I take amitriptalne I know these drugs are strong but needs must hope you get sorted , I can take up to 6 tramadol a day but limit my self to no more than 2 a day when working or driving as if you have more than I ink 150 ml in your blood you can get you arrested for driving under the influence of drugs but as I say it is the only pain relief that has worked for me but it is a marmite pill it likes you or it dose not

Dalollies profile image
Dalollies in reply toIanrussell69

I also take amatriptyline for migraine. I don't work...I usually don't take anything anyway but this is getting pretty Unbearable. I was thinking a glass of wine might help.

Penelope-Mary profile image
Penelope-Mary in reply toDalollies

....I was going to add that 🐱👍🏻

🤗

Mandagee profile image
Mandagee in reply toDalollies

No wine if it's a migraine .Will make it sooo much worse.I suffer from really bad migraines and I have a specific med it's called zolmitriptan.My son has migraines too and he has sumatriptan.both work really well.normal painkillers will not help migraine but could help with joint pain.u r migraine could b linked to other pain if you r tense and unable to sleep properly this can trigger migraine.If u can manage a hot bath for joint pain then lye down in cool quiet room put cold compress over u r forehead / eyes and sip plenty of liquids try n get some sleep.make sure and try n eat something decent.high sugar content can make migraine worse. Sorry u r feeling so crap I can sypathize.My pain is all my right side and I get migraines wen I'm not getting what I need for my body.

Penelope-Mary profile image
Penelope-Mary

Hi, yes I too know this pain all too well. My body -muscles and joints ache and I feel as if ants are crawling and biting under my skin...all over. I get migraines as well.

I don't have an easy solution. I take a dose of prescribed analgesia at lunchtime, by evening I'm better equipped to cope, knowing I can chill......

I'm sorry for you and can only suggest that you let your doctor know how severe the pain is, in order to be treated accordingly. I adhere to all the lifestyle management techniques but it is not sufficient. Do please get medical advice, we shouldn't have to 'suffer in silence'.

sending gentle hugs

PM

🐬

Dalollies profile image
Dalollies in reply toPenelope-Mary

Thank you for the kind words!!! I see my Rheumatologist on Monday hopefully I can get something for it.

Penelope-Mary profile image
Penelope-Mary in reply toDalollies

.....it is a very important part of overall management

keep us posted as to how you get along with your appointment Dalollies.

🤗

Ianrussell69 profile image
Ianrussell69

I would not have wine nice try just want to add migraine headache is about the only thing tramadol dose not ease for me

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