Lupus and weganers

[Jeffscott69]

I was diagnosed with lupus but my rheumy questioning weganers,had 5 sinus ops,not worked,ent surgeon said next step is to obliterate sinuses,apparantly weganers can cause this,has anyone got weganers disease.

[PMRpro]

The best place for you to get information about Wegeners is through VasculitisUK on this site:

healthunlocked.com/vasculit...

It is a vasculitis so there are lots of people over there who can tell you about it.

[Jeffscott69 in reply to PMRpro]

Many thanks for reply.

[Hidden]

Hello there,

I am sorry to hear that you were recently diagnosed with lupus and might also have to deal with an additional condition.

You might find having more information about lupus useful and you can request an information pack on our website here lupusuk.org.uk/request-info... as well as have a look at various other leaflets we provide about the condition lupusuk.org.uk/publications/

You might also be able to find more information about Wegener's granulomatosis at vasculitisfoundation.org/

I hope your rheumatologist is able to confirm your full diagnosis soon.

[Hidden in reply to Hidden]

The Vasculitis Foundation is an American charity. There is a British Vasculitis charity called Vasculitis UK. This is the link to the website which is completely peer reviewed.

vasculitis.org.uk

In fact Lupus UK and VUK are both on the RAIRDA set up by the BSR to raise awareness of rare, auto immune disease.

[Jeffscott69 in reply to Hidden]

Thanku so much for your help,i received an information pack a while ago from paul howard,i see my reumy on wed,got lot of questions to ask,one of your volunteers been a great help today,this is a great site!,i need to work full time,and enjoy my work,so debilitating not keepinv good,taken time off work caused lot of problems,they didnt understand,despite letters from consultants,however after 3 attempts at trying to get pip award,i got it,low rate but so grateful,i can drop a day at work to rest.