How odd. I vaguely remember joining here looking answers in 2012. I was pregnant with baby two and had just had a borderline result for SLE.
I had another baby in 2013 and was poorly afterwards. I have now been under the care of a rheumatologist since 2014 I have numerous bursitis the butterfly rash borderline test results still. I am however being treated with hydroxychloroquine venlafaxine and pregabalin and have to have steroids about every three months to dampen down the pain. As I understand it I can stay in this hiatus of no definitive diagnosis forever.
Life has deteriorated significantly in the last two years.
I cant walk very far at all. I am in pain daily and I have become significatly photosensitive i was before I had Hydroxy to be fair. My hands and feet have taken brunt of the pain. I am awaiting to see my GP as it appears I have developed psoriasis another autoimmune disorder. I have awful night sweats . I am still trying to work out my triggers that cause flares which currently include
Stress; Aspartame; certain spices; alcohol; sun; lack of sleep;
Any one else in here still with out the formal diagnosis but treated as though you have SLA