Not getting no where with consultant: So I was... - LUPUS UK

LUPUS UK

31,693 members28,072 posts

Not getting no where with consultant

2 Replies

So I was diagnosed over 2 months I think now with inflammatory arthiriets, mixed connective tissue disease and the start of lupus...

I have had many problems going on with meds such as allergic reaction to hydroxychloroquine which my consultant is aware of, but now I can't cope with my pain at all, I have been collapsing from my legs just giving way, throwing up from the extreme pain and just in extreme agony every day.... Myself and my mum have called my consultant but his told me just to go and see my GP and wait until I see a new specalist for the tissue disease which won't be for a few months now and he doesn't want to see me until after that?!

So what now, do I spose to be left and made to suffer for months on end.... Just seems like now they have finally got a diagnosis out of me they have just left me...

Read more about...
2 Replies
PMRpro profile image
PMRpro

Go and see your GP, together with your mum, and make it clear you wish to be referred as an emergency to your new consultant. Emphasise the state you are in. Referrals come in different "strengths": routine which take longest, urgent which are a bit earlier and emergency which are just that. It may also make a difference what hospital you are referred to - some have longer waiting lists than others.

Lupiknits profile image
Lupiknits in reply to PMRpro

I'd go back to your GP, with your mum, if possible, and see if anything more can be done for the pain, at least. I don't know if you have any pain relief at the moment, but my experience has been that my GP has been very willing to help me get some relief ( while pushing the consultants to see me - though that hasn't been hugely effective). While I'm not happy that I need so much help with the pain, it has made life a bit easier to cope with.

On top of that, I think PMRpro's route is a good.one to take.

You may also like...

Think some consultants get their qualifications out of lucky bags!

Well, had Lupus/Connective Tissue Disease for 6 years now and was relatively settled on Methotrexate

Not where I'd expect to get dating tips but...

my life now where I would like to start looking around for my future companion, but now I have got...

Better access to consultants/specialists

years I have been to my GP, regarding my Lupus symptoms that have arose in between consultant...

Consultant Rheumatologist

are able to see a consultant out with your own health board area? My previous consultant was...

Update reappointment with Eye Consultant post cataract surgery.

test , after test and then seeing 2 consultants not 1 but 2 Specialist!and left the hospital at...