Concerns about daughter

Poor thing!

I suggest a re visit to GP and ask for more help or a second opinion.

Hoping things improve soon

Am so sorry mcjm: poor darling....and so far the diagnosis & treatment really don't seem v convincing.

I wonder whether there is a possibility this could be early onset lichen sclerosus...are her symptoms clearly affecting the vulva/external genitalia primarily? Often all those external undercarriage tissues flare with inflammation, dreadful soreness & itching in LS. It's agony. The women in my immediate family & I all share the diagnosis of LS, and my youngest sister apparently first had symptoms in early childhood. We all have autoimmune conditions too (I'm the only with lupus though).

Perhaps it isn't the autoimmune condition LS...but LS lifestyle management techniques may be helpful to you while you're figuring this out

My wonderful LS forum includes members with children of all ages in treatment for LS. Sadly, MANY Drs don't know the signs & symptoms, so it often goes undiagnosed while sufferers are treated for more familiar complaints like thrush, vaginitis etc. There are other good LS forums (patient uk has a good one) but, although I've lived in the UK all my adult life (am 62), I've found my UsA forum suits me best...it's a long-established forum on yahoo, and extremely experienced + legitimate + sensible:

Our HOME page is groups.yahoo.com/neo/groups...

But NB the USA forums use different trade pharmaeutical names etc

The keys to treatment are lifestyle management + THE strongest form of topical steroid (dermovate in the uk...less strong topical steroids simply cannot help) which really does help...many of us use this alongside the antimicrobial emulsion Emulsiderm. We TOTALLY avoid contact down under with perfumed bath products & moisturisers etc eg aqueous cream makes my LS flare, also with synthetic fibres &/or bleached pads etc. AND, once my infant onset lupus diagnosis was recovered + treatment begun, my LS became even more manageable (when I had to stop hydroxy for 5 months last year, my LS flared slightly 😏)

Please let us know how this goes

Wishing you success: convincing diagnosis & treatment + management that really help

🍀🍀🍀🍀 coco