20,845 members16,550 posts

Update on Rheumatology Appointment !

Oh well a little update, I went & seen the rheumatogilist & was told by her since my doctor did a ana test & it was negative she would not bother doing another as i've been unwell for so long it should have probably shown up positive ?? So she sent me for a nuclear bone scan ? I've still not had the results & I'm still very much ill :( so fed up ! I'm now on 3 monthly injections for pernicious anaemia and take vitamin d, I can't wait 3 months for the injections I was crawling before my last injection so when I see my doctor next I'm telling him I need them every 2 months & if he doesn't agree I have 5 vials they gave me home I will inject myself. The rhuemo doctor said having fibromyalgia and M.E is like a cancer patients pain in their last days & I will need to try & accept my diagnosis well sorry if I want to be healthy & nobody can help, currently dealing with pain, wasted muscles, bloodshot eyes & swollen eyelids & blood in my urine, sores up my nose & that's just today 👎 tomorrow I start my dental treatment to try & repair my damaged teeth. Does anyone know what the purpose of a nuclear bone scan was for ? Thanks x

Reply Like (0)


Submit reply

Next posts

Amaemia self testing?

Twitchytoes4 months ago

Does anyone know if it's possible to self test using pin prick tests for anaemia? My 20 year old son is completely needle phobic after bad e...

4 Replies

spina bifida occulta anyone?

Barnclown4 months ago

following on from the great discussion that resulted from my question last week about the flare (with a twist) of chronic abdomen/peritomeum...

11 Replies

hydroxychloroquine & leg pain

Dani834 months agoPOPULAR

Hi all, been on hydroxychloroquine for nearly 3 weeks. Ive got pain on my left thigh. Ive not done anything to my leg that i know of. Can th...

25 Replies

view 27 more

Related Posts

Do I have lupus

Newbie in need of reassurance

Confusing sensation?

Feel very demoralised

Autoimmune screening normal.

view 5 more

Pinned Posts

May's Topic of the Month - Going on Holiday with Lupus

Belimumab (Benlysta) finally approved for limited use on the NHS

Welcome to the LUPUS UK Community. Feel free to introduce yourself.

Your rights as a Patient


All Things LUPUS UK (195)

Diet & Lifestyle (132)

Doctors Appointments (110)

Getting a Diagnosis (302)

Medications (411)

Newly Diagnosed (144)

Symptoms (812)

Work & Benefits (173)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

4 Replies

With those symptoms, I'd be tempted to go private and see if they think it's seronegative lupus. Even if they don't, you'd probably feel happier knowing it's been thoroughly investigated.

Friars xx

1 like

Hi there thank you for replying, do you know how much it costs for private tests ? I'm so sick of being sick :(


I think it hugely depends on where you go but I say a post where someone said it was about £400. I was getting seriously tempted to do that, even if I had to put it on my credit card, it seemed like a small price to say for the right treatment but my ana is now positive so I'm being referred now. It's awful when you're so ill and no-one can really tell you why. I hope you can get some answers xx


God that's a amount I couldn't afford :( I haven't been able to work for 10 years & don't claim any sickness benefits its a struggle with finances but I think I might ask my mum as I can't go on like this anymore the last 10 years have took its toll & all I want is to be well, I'm sorry to hear of your diagnosis and hope your not having to bad a day ❤


You may also like...