shooting tingling feeling throughout hand...

[berkeley_ayres]

I am new to this app and I don't understand but I get a tingly shooting feeling down my hand and into my fingers. it happens random or when I start to run... am I crazy or is something up ?

[Sarah4314]

I get a lot of tingling off and on for about two years. I haven given up trying to figure mine out:). I definitely get it in sun. I would ask your doctor.

[misty14]

Hi Berkeley

Does the tingling affect your index finger and thumb?. Is it worse at night?. You may have carpal tunnel, good idea for you to get it checked by GP. Good luck for that. 

[magSLE]

Hi, I started getting more tingling sensation due to Raynauds Phenomenon (poor blood circulation condition linked to Lupus). Now I get it relating to Neuralagia (nerve pain condition). Both affect my fingers & toes sometimes shoots up my arm or affects side of face. I take Pregablin but only when the pain is unbearable & disabilising as I take enough meds as it is. I pray that it is just a temporary pain for you. Its always frustrating getting random aches/pains & not knowing if your body's telling you something is wrong or serious. Lupus is a liar! Hope you find positive ways to cope. Stay positive! Have you told your GP or Rhemy yet?

[Circles]

Hi I have tingling  in feet hands, face and mouth without pain.I have seen a neurologist and had a brain MRI which was OK thank God.He mentioned neuropathy. I have it about 3 years now and it was a lot worse before Plaqeunil especially at night in bed.I am lucky it's not too bad or else I'm so used to it lol.Nothing surprises me anymore with lupus.when the rash on my face flares I get it there as well.It must be awful for you with this pain.And no you are not crazy something is causing this I just gave up trying to figure it out as there is always something else going on. Circles xxx

[RhondaB in reply to Circles]

Hello.  

If you Dr mentioned neuropathy I'm wondering why he didn't  prescribe anything.  I have neuropathy aslo and i was on gapatin wich helped, the he put me on lyrica and i love it.  it started working 2 days after i started.  the only time i have the tingling is when i forget to tae the lyria (on 36 pills) but soon as i take it within minutes i feel it working and the pain in my feet and hans are gone.  you may want to ask him, it couldnt hurt.

[Circles in reply to RhondaB]

Hi Rhonda, thanks for your reply.When I went to the neurologist he was explaining about neuropathy and said I seem to have it everywhere.That was before I had the brain MRI which was OK except for a few disc changes at the top of my back,neck area.He said in his letter these would cause tingling in arms and legs but not the face and mouth.I didn't need to see him again so I just keep telling docs I'm still tingling away and the rhuemy doubled my plaquenil and am waiting on blood results.I don't have any pain with this tingling so I'm waiting to see if anything shows up in bloods.Like most here some things I just put up with as I try to prioritise the bad stuff at the time.Thanks Circles x

[EOLHPC]

😉 it's crazy, not you

My version of this has been reasonably well investigated over many years and found to have overlapping causes: SLE, SS, EDH, Dysautonomia, PID  + cervical spondylosis.  My combined therapy lupus meds do help keep it mainly damped down to a reasonable level...but I also do a lot of lifestyle management

The weight bearing & strain involved in running & other exertions can aggravate some aspects of my version of this

My feeling is that you'd do best to mention this to your GP ASAP

🍀🍀 coco

[Quuen in reply to EOLHPC]

I am awaiting a diagnosis and its intrigued me that you have PID. After hearing i may have lupus i wondered if there was a connection. I have had it twice in the last year alongside stiffness and pins and needles shooting down my arms and fingers. As well as joint pain and swelling, fatigue and being sensitive to light. Pains seem to be getting worse the closer the appointment gets🫠

[EOLHPC in reply to Quuen]

hello…a lot about my case has become more convincingly understood & adequately treated + monitored over the past 7 years since this discussion here. Seems there are quite a few PID & SID people with simultaneous autoimmunity & neuropathy of various types. Eg We now know my lupus-related sural axonal peripheral neuropathy & small vessel vasculitis have combined to give me severe Raynaud’s ischemia reperfusion injury of the feet…& my lumbosacral vertebral fractures + 2019 instrumented spinal fusion have caused my scoliosis to segue into severe neuropathy of several types which are making my early onset hEDS severe mouth to exit slow transit dysmotility segue into chronic intestinal pseudo obstruction. & of course my immunology PID team are on the alert because all that predisposes me to various infection probs. But now they have me on long term immunomodulation dose IgG replacement therapy + daily antibiotics, so….sorry I can’t be more helpful…Hope your appt is constructive…🤞💞

[EOLHPC in reply to EOLHPC]

lots of us are curious about how this simultaneous immunodeficiency disease & autoimmunity disease thing ‘works’ 🤷🏼‍♀️

Maybe these insights can help a bit more

[house77]

Hi Berkley

By what you have explained,i would say you could have the same as myself..I have had carpel tunnel for 5 years.along with a tennis elbow.. .I used to get really intense pins and needles at night time.or when resting my arm.Am getting pins and needles now just texting this on my mobile..I have had quiet a few steriod injections in my elbow.painful.but worth it..my injured arm was due to my last job.being a full time cleaner 5 years ago..Please see you dr and explain your symptoms. .good luck.xx

[Tiras]

My 3 middle toes on my right foot tingle and feel like they are asleep. This is constant, this has been going on for Almost 2 years. My Doctors have done many test. Everything comes back normal. They have finally said it is effects of lupus?

I also have a rash/whatever on that same foot. On my page there is a photo of it. I have not been able to wear shoes (other than leather or cloth flip flops when  absolutely necessary) in almost 2 years. 

Keep me informed what your doctors find. If my doctors find or tell me anything I'll let you know. 

[chrisj]

Mine is carpel tunnel....trapped nerve in my wrists and it was bad last night. Going to have minor surgery to release it, I see the consultant this month

[Ellenkay55]

My husband has carpel tunnel syndrome. He wears a thermal glove at night and gets an excellent night's sleep, pain free. Gloves were bought a few years ago when he went to India on holiday to the Himalayas. Not special gloves which can be expensive.