Fatigue

[Jo_25]

The two haven't been feeling it, I feel weak today. I don't have that much strength in me. I hate this.

[Sami1982]

This is the thing u struggle with the most, I have a 1 year old who insists on waking me up at half 5 each day, I try to nap when he does but then other things don't get done. I work part time in an evening so don't get to bed bed any earlier than 11:30. If Im not at work I find I go to be at half 8/9 meaning I don't really see my partner. I've started to take vitz just too see if they help. I feel you despair all o can suggest is sleep whenever you can and try to stay positive  

[Jo_25 in reply to Sami1982]

Oh I know what you mean I have a 9 month old baby n a 6 year old. I have to be on my toes, but been down lately. But today was better got things done. Thank you

[amandalilley]

I am so so sorry that your strength, determination has deserted you today.

I am sending universal hugs, love, compassion and empathy to help you through this difficult few days.

Hating the symptoms of lupus is so easy to do, we all do it, every day....Me personally, I tend to hate, cry, shout, scream, rant, rave (one my own mind you... lol) and even throw a few things or punch a pillow.... this leads to acceptance of the symptoms and I can then generally lift myself up again..... but every one is different and I would not presumd to say my solution would work for you

But I wanted to reply to let you know you have support, empathy, understanding and mountains of love coming from everyone here. 

Please feel better soon. Take care..

Mandy 💟💗💖👋👋👋

[Jo_25 in reply to amandalilley]

Thank you I appreciate it. Today was a little better. I was able to get some cleaning done. Which I have been wanting to do for so long. Hope all well you to. 

[leannehowis]

Hugs x

[larainehudson49]

I have suffered from chronic fatigue since I was diagnosed 15 years ago, though I believe the fatigue started a while before that. I was so tired after work and now realise that wasn't,t normal. All that was said to me at my they my appointments was fatigue is most difficult part of the illness t treat. So I was told plenty of sleep and rest and pace myself which I was already doing, no choice. A year ago I discovered Hydroxichloroquine, my consultant prescribed it for me, within a few weeks I had at least a couple of hours a day extra feeling more alive. It is still helping me to a degree. If you don,t already take it, it may be worth discussing with your doctor to get his advice and opinion. I so know how you feel, having to literally drag yourself around , it,s soul destroying. I sincerely hope you can find something that helps.

[Jo_25 in reply to larainehudson49]

Thank you I am taking that as well. But it's only 200 mg a day..I hope is all well with u too

[larainehudson49 in reply to Jo_25]

I hope you soon improve, best wishes for the future.

[Paul_Howard Partner LUPUS UK]

Hi Jo_25 ,

I'm sorry to hear that you are struggling with fatigue. We published an article on our blog about this earlier in the year. It includes a lot of tips and experiences from other people with lupus.

If you'd like to read it, you can do so at lupusuk.org.uk/managing-fat...

[Jo_25]

It was very helpful, thank you.