Red and white blotches. Palms and forearms. - LUPUS UK

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Red and white blotches. Palms and forearms.

Poppyfields65 profile image
18 Replies

I've been getting this for a year or so but never when I'm with a doctor and before now haven't been able to get a decent photo. Although this doesn't  look very clear on here unless you can zoom in.  Anyone get this?  It's all under the skin,  nothing on top.  Comes and goes. 

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Poppyfields65 profile image
Poppyfields65
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18 Replies
Bacardibabe76 profile image
Bacardibabe76

Hi Mickyaela

I have had this before when I was in hospital it came up on hands and feet with a vengeance.  No one could tell me what it was! 😞

L x

LesJames profile image
LesJames

It looks like a mild form of Livido rectularis, excuse spelling of it.

tracynoe profile image
tracynoe

It's Livedo reticularis I have had it all my life it's part of my disease when the disease is active mine gets a lot worse. You need to show your consultant the picture a lot of GP's don't realise it is connected to disease.

Bexs18 profile image
Bexs18

Oh wow, I get this didn't realise its an actual condition, as far as i can remember, always had this on and off. Think it could be related to my raynaulds.

rlupus profile image
rlupus

I get this and have been told its related to my raynaulds.

I get this too - especially in my feet and knees. I don't have APS/ Hughes apparently but my rheumy told me it's a sign of this. 

Poppyfields65 profile image
Poppyfields65 in reply to

Hi Twitchytoes.  One of the blood tests I just had included antiphospholipid.  Is that Hughes?  So we'll see.  Thanks. 

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to Poppyfields65

Hi Mickyaela,

Yes, Hughes syndrome is another name for antiphospolipid syndrome, APS or sticky blood. 

To learn more about this condition go to hughes-syndrome.org/

Poppyfields65 profile image
Poppyfields65

Thank everyone for your comments.  I will definitely show my GP when I see her and ofcourse the neurologist who is the one currently doing all my tests and thinks I may have lupus.  I'm currently waiting an MRI of spine and brain,  nerve tests etc, blood results etc. 

I did introduce myself with my story a week or so ago. 

X

Catlady56 profile image
Catlady56

Yes I have this on palms of my hands too. I also have raynauds. When my fingers are turning red white and blue, and my palms are mottled and blotched, I think I could exhibit my hands at the Tate as a "work of Art"! Currently I have restless legs and brain fog today. May be better tomorrow or it may not be. All part of the adventure of auto immune condition :)

Purpletop profile image
Purpletop

I suspect it is blood pooling, usually found in people with autonomic dysfunction or POTS. Basically the blood pools to the extremities because the system regulating the blood pressure isn't working as it should. Do you get blood pressure and/or heart rate fluctuations? Lightheadedness? Unable to stand for long? Fainting or near-fainting spells? 

Poppyfields65 profile image
Poppyfields65 in reply to Purpletop

I don't have blood pressure problems but I have 24/ 7 dizziness and I do sometimes feel very weak near collapse if I'm standing say for an hour or do in the kitchen and I have fainted in the past.  I will show the doctors and see what they say.  Thanks. 

charbblueskies profile image
charbblueskies in reply to Poppyfields65

me too!!! (i dont know if you will get this)

Sami1982 profile image
Sami1982

I went to the doctors with the same thing about 4 years ago, I got it on my calf's initially and the Dr tried to tell me it was a fungal infection which I did very much doubt at the time but tried the shampoo she suggested and it didn't work. Over the years it has got worse and I now get it in my hands and forearms and never thought to mention it to my consultant. I awaiting referral to a specialist to find out just how aggressive my ITP and SLE is so I'll now be sure to mention this too

Missnatalie2018 profile image
Missnatalie2018

Hi hun what was it

Minimebloom profile image
Minimebloom

Yes!!! What is it? I have it on my hands and my feet and sometimes on my arms

Poppyfields65 profile image
Poppyfields65

My rheumatologist saw my photos of it yesterday among others of rashes. She was interested, asked if it was itchy. I said no.

The conversation was moving rapidly covering multiple symptoms flaring since my appointment 3 months ago and an opinion wasn't shared. Which is often the case....

Its a symptom that doesn't affect my life and I tend to concentrate during my time with her on those that do.

I suppose I just assume that she will act accordingly.

I'll put it on my list to ask her what she thinks it is next time and hope that at my next appointment I have less to share with her and therefore have more time.

notsayin profile image
notsayin

i only get that exact same thing wen i been drinking and something else to heavy in the same night

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