Hello all. Ever since my diagnosis in 2010, I've been trying to keep up to date on info about erythromelalgia (the burning syndrome). over the years, I've been suggesting here on forum that the Erythromelalgia Association website & Facebook page are probably the best place to go:
But recently, I decided to check out what wiki has now...over the years, I haven't felt the info there was all that helpful, but GOSH 😀 it's improved recently...and I'd recommend anyone managing erythromelalgia takes a look via this link which includes REALLY REALLY good up to date explanations & advice re treatment:
Maybe some of you have been there recently too?
Wishing you all the very best with your EM...am almost glad summer is drawing to a close...my erythromelalgia is simultaneous with raynauds and this summer has been one long nightmare 😨 of bedsocks + leg warmers + sandals + bare feet + loads of shea butter moisturiser all within the same 24 hours according to which of the 2 conditions is flaring at which point in the day...