Feeling drained with lupus

[andreabm]

Symptoms still ongoing sore hips and joints Pain keeping me awake at night and feeling tired like iv ran a marathon all the time and feeling all over ill and weepy with it. When will things improve. Saw doc who said more time and more painkillers needed but I feel it's masking the pain and not dealing with it . What to do

[Ilse70]

Hi Andreebm. Sorry that you are in so much pain. I think it must be difficult for the doctors who treat us as they also don't have that much options. My doctor starting me on a sleeping pill to assist so I don't wake up so much at night from the pain. Also added additional painkillers to help me through the day. It is tough but hang in there. We are all together in this. Kind Regards. Ilse

[Hidden]

Been there for nearly 2 years. On painkillers too as I can't take anti-inflammatory tabs as I'm on 3 blood pressure tabs so nothing they can do - thoughts and prayers that you feel better. Weepy kind of goes with it some days, you aren't alone, take it easy when you feel like that, hugs xx

[magSLE]

Hi andreabm, long periods of poor health can be frustrating. I hope you recover soon. I take a low dose of Predisnole (5mg per dy) for my arthritis inflammation & it works 3/4 times. Stay positive!

[Teaspoon13]

Oh bless you

It's like I wrote that post myself !

I'm in the same boat as you at the mo but not normaly like that with the med's I'm on. Just a bit of a flair up at mo

Keep your chin up honey

[tracyxx]

i have sleep really bad at night time? aches and pains. just had bloods done..

only thing i do have paracetamol before bed. feel angry though so tired all the time!.

[andreabm]

Thanks for for gettin back to me . glad to Know I'm no the only one that feels certain ways. My hips r on fire the now and seem to be worse at night and during nite

[Roanna in reply to andreabm]

I use to get the pain more often but it makes a difference when they have you on the right pills, time to see your specialists. prednisone was and is my good friend when I get a slight flair, it just knocks it back into shape after a few days then I lower it gradually. only on it for 1 week at most and usually only 10mg. Hope they can find a pill to balance things out for you because what you are doing doesn't seem to be doing the trick. good luck. I know I'm going to have to change up my pills soon due to the same problems but I'm always hoping a lower dose on the same pill will keep me flair free. Hope they can figure something better out for you.

[permanentgrowingpain]

hi andrea

i have very painful hips and joints my connective tissue feels like its tearing ive not lupus the rhumatologists i saw said that ive got fibromyalgia . i still think ive got something other than that as the connective tissue thing comes and goes but ive given up battleing with docs as whatever it is its not ever going to go if flares up and makes me wince in more pain than usual ive got arthritis as well in my hips but this is something else . once diagnosed every thing is labled fibro or arthritis . i had ME years ago from being given a a live polio vaccine and have never been well since . its all came and went in flares then now its all permanant . my muscles dont get the messages as well some times so i fall in doors upsteps kerbs etc i think my feet are up but there not so i stub them on kerbs etc and fall over . occasional get a new doctor trainee who is interested and seems mutch more tuned in but they go of to other practices never to be seen again . i had one said i see you had ME back in the day . she said do you think you ver got rid of it . i said actually no but no one cares or listens . she said she would be back in a few months and we could discuss it further but she never did she must have got offered a new post permanently somewhere else thats the nearest ive got to having someone actually recognise the links . oh well will batter on hope you get somewhere . keep asling questions and dont give up you may meet someone who takes thetime to understand instead of processing you like a robot