Anyone tried accupunture or Chinese medication for Lupus?

[vambat]

Just want to know if that can help

[MelAlice]

Hi, I have a long term back problem, I've never been sure whether it's related to the lupus or not, I assumed not as the pain was constant where as other joint pain came and went. But I'd been seeing a new physio for hip damage and had acupuncture on that so I mentioned my back and the lupus, she's been doing acupuncture once a week for 6 weeks now and the pain is hugely reduced and I do find it very relaxing which is a help anyway! She did look into acupuncture and lupus and there haven't really been any trials. Hope that helps x

[vambat in reply to MelAlice]

I dont have joint pain constantly until these few month. My boss and colleague suggest me to try accupunture, I think I may give it a try.

[misty14]

Hi vambat

I've tried acupuncture and found it a good pain reliever but it flared my illness so I'd say be careful. Hope that helps. X

[vambat in reply to misty14]

Thats why I am struggling to go for a try.

[magSLE]

Hi, I've got SLE, Raynauds & APS. I tried Acupuncture in my legs for 1st time mths ago. It easied my arthritis pain. I got a good £20 for massage & acupuncture from Groupon or Amazon Local deals. Shame I can't afford usual £40 for 20min sessions. I wish you well

[vambat in reply to magSLE]

Hi MagSLE,

I know that accupunture just like a course of treatment, you have to go several times before you notice the result. So, it cost ……

vambat

[Kate-L]

I went to an acupunturist before I got my SLE diagnosis, as I had swollen knees, ankles, wrists, hands, elbows and the doctors had tried, but had been unable to control it. I was desperate for someone to help me as being filled with steroids was not helping. I found a wonderful acupunturist - he told me that he could help the swelling and actually stop it, but he could not help the underlying auto-immune disease. I had three sessions and after that have not had a swollen joint (that was 15+ yrs ago now). Please speak to your doctors before you decide to go ahead with acupunture as it can help symptoms but is not suitable for everyone.

[vambat in reply to Kate-L]

Hi Kate-L,

Thats impressive, will definitely speak to my GP before trying. Thx for your info.

[Mariedg]

I had acupuncture for the pain in my back and right side about a year ago before I was diagnosed with SLE and it helped a great deal. Had no pain for months! But I also have arthritis so I am not sure whether it was the arthritis pain or pain related to lupus that was relieved. My GP was noncommittal when I asked if I should continue and the pain is back in full force. Planning to go back early next week if no improvement before.

[vambat in reply to Mariedg]

Hi Mariedg,

I am planning to try few sessions when I visit my mum in HK this summer, hope it can help to release my shoulder pain. My GP didnt do anything after sending me to Xray and ultrasound. Nothing heard since early May. A bit frustrated.

[Mariedg in reply to vambat]

Good luck! I hope it helps.

[rlupus]

Hi I have acupuncture every 4 weeks and do get some relief from pain , it maybe worth giving it a go .

Good Luck

[vambat in reply to rlupus]

Hi rlupus,

It seems its worth to try rather than taking pain killer.

Thx for your info

Cheers,

[Mariedg in reply to vambat]

I believe it is definitely better than taking pain killers especially as they can mess up your stomach

[kazp]

Having lived with lupus for 32 years I'd love to try it! Alas its out of my monetary means and the closest is a 30 mile round trip.

Give it a go anything is worth a try.

X

[vambat in reply to kazp]

yes, worth a try, am planning to try this summer.

[Cann]

I came out in bruises and felt awful after acupuncture - I think it was too heavy a treatment for me; natural healing and kinesiology was good, though.

[vambat in reply to Cann]

Hi Cann,

Are you seeing a qualify one? Shouldnt hurt like bruises.

Vambat

[Cann]

Yes, I have seen a couple both qualified and the second time I felt really bad, too, so gave it up and stick with what works for me. We are all different and what works for one doesn't for someone else that is why it is so difficult getting the right treatment.

[flo_IarFachYrHaf]

I've had acupuncture privately and on NHS. I was lucky in that the traditional acupuncturist was willing to greatly reduce fee. It can have a strong effect so you d really need to look about for someone experienced and do research. The first appointment is important and will take a long time - and will cost more - if it doesn't then they are not the best practitioner for you! They need to know about or be willing to research Lupus.

I had chinese herbal treatment a long time ago for endometriosis, I responded much better to "western" treatment via medical herbalist. After 2 appoints the chinese herbalist said he felt it was not going to work - which was helpful rather than keep taking my money!

It can bruise me and the searching for the points especially on my legs hurt more than the needles. I haven't had for quite some time - geography rather than money!

I would not have treatment in a notable flare.

The NHS sessions via the pain clinic where helpful. this was specifically for upper back and shoulder pain. So not like chinese medicine version.