Lichen planus and lupus

[paula1969]

Hi has anyone been told they have lichen planus and been treated for this only but has all the lupus symtems ?

[Minimum]

I have both My lichen planus is in my mouth and I'm treated for that when I have a flare up, I'm treated for my Lupus all the time as both are autoimmune conditions it treats both. I hope that explains it a bit more xx

[paula1969 in reply to Minimum]

Hi minimum. My lichen planus is just my skin not my mouth. They tried puva uva which should help lp but it made me 10 times worse as lupus is light sensitive i inject methatrexate to lower imunity but gp treats lp only im in so much pain hair loss and exhausted all the time i have the rash on my nose and checks and skin elsewhere for 4 years nearly now which lp shouldnt stay thst long with no break should it xx

[Minimum in reply to paula1969]

No it shouldn't, I really feel for you, I'm so tired at the moment it's not funny, so my GP has got me coming off my pain killers . . . . . so I may be more awake but in agony!!! I also have Arthritis all over in my spine most of all!! If I can think of anything to help I'll get in touch. Good luck xx

[paula1969 in reply to Minimum]

Thank you minimum i think i av lupus but gp hasnt diagnosed it yet im waiting for xray and bone scan appointments to see if i av osteoporosis xx

[SharonMack50 in reply to Minimum]

Blessings Minimum, I was was diagnosed with Lichen plans over 2 Yrs mouth and body. They tried ointments and antibiotics nothing is working. My mother has Lupus and I am suffering with fatigue very bad. Just yesterday my whole body was so weak and hurting all I could do is lay down.

I'm scared to seek a doctor to see if I have Lupus like my mother.

I don't want my kids to know this at all.

So frustrated but I know something is wrong with me.

[Minimum in reply to SharonMack50]

Sorry I haven't replied before now I'm just not on here to much.

You really should see a Dr, and it might not be Lupus it might be something else, either way they might be able to help you where they can't your Mum, we are all different remember. xxxx

[Minimum]

Keep pushing for the x-ray and scan to be done quickly, you deserve some help soon. xx

[paula1969 in reply to Minimum]

I will and you take care to xx

[dawnepearse]

Interesting! I have Lupus and my Husband has Lichen Planus, I never knew there was a connection!!

[paula1969 in reply to dawnepearse]

Hi dawnepearse your husband has lichen planus can i ask what are his symtems ?

[dawnepearse in reply to paula1969]

Hi, he has it on his head and down the side of his face it looks a bit like Psoriasis but he also had a lump which he had a biopsy on and it came back as Lichen Planus, which we had never heard of. It usually flares up when he is stressed and is itchy, it is supposed to run it's course in around 18 months he was told but he has had it for at least a couple of years now.

[paula1969 in reply to dawnepearse]

Hi. I have the sores on my head and on my face was realy bad on my back also. I also have the rash across nose and cheeks (lupus rash) thats what i think it is as iv has it 4 years now. I dont have any mouth issues but they tried puva light therapy that should help lichen planus but made me so bad and burnt the consultant stopped it. I believe lupus is light sensitive ? I had biopsy on my back and head 4 years ago gp said lichen and for last 4 years iv had skin rash that never goes away ever. I now injected 17.5 methatrexate and iv tried every steriod there is but non work. The pain in my joints is so severe im avin bone scan and xray. I think i have more lupus symtems than lichen ?

[dawnepearse in reply to paula1969]

Well your symptoms certainly seem more like mine with Lupus, I have the face rash, worse at the moment because of the Sunlight levels and joint pains, Hubby only has the rash on his scalp that flares now and again, no other symptoms like Lupus at all.

[paula1969 in reply to dawnepearse]

Thank you after reading comments lp should ease or even go and maybe helped with sun/light mine hasnt and very sensitive to light and joint pain unbearable

[donna]

I have LP and lupus and lots more autoimune stuff going on....

I have Lp in my mouth , vulva , vagina , ears and throat ...infact they call

It LP of the mucosal membranes .. it does flare ... I have had it for nearly three years ..

I belong to a group on face book ... Lichen Planus support ....

There are lots of people who suffer from all forms of LP.... All helpful and with empathy .... Check the site out xx

[paula1969 in reply to donna]

Hi donna. What was the main symtem for lupus you have. With the lp its just my skin affected face chest back head and arms x

[jLiz in reply to donna]

Hi Donna, I have LP in some mucosal areas. Lab work reveals I have positive ANA and stage 3 CKD....rheumatoid diagnosed me with osteoarthritis & fibromyalgia. Do you know if there's a Lupus/LP connection? What are your Lupus symptoms & what other autoimmune disorders do you have?

I'm just trying to connect the dots; While trying to establish a new medical care team.

Thanks in advance!