Hi everyone i have been under rheumatology since January 2015 due to fatigue muscle pain joint pain and swelling. My consultant was thinking arthritis and ultrasound scan was fine with only mediocre raised bloods. I next saw a registra in March and showed her some pictures of a red face (red strip going across cheeks and nose) and skin rashes. she wants me to see my consultant again and this is in August. I went to see my GP about the red face alongside some other female symptoms and though the red face could be hormonal. He doesnt think so and has mentioned lupus and that i should discuss the possibility with my rheumatologist. I also showed GP my hands as the tips of my fingers look like i have been handling newspapers all day as they have that black appearance to them. Hands and feet go cold and can be under blankets in the summer. So he thinks i also have raynauds. I have previously been under cardiology for chest pains (which i still get) fast heart rate and breathlessness and i have an underactive thyroid. Now i know my ANA was negative when bloods were taken in January. So my question is what should I be saying at my next rheumatology appointment? i am still taking pictures and was thinking the month before appointment i will keep a diary. Are there any questions i should be asking. can you have lupus but bloods are negative? Sorry i just dont know what to do and ive had enough of this pain and fatigue and the embarrassment of the red face. Thanks in advance.
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