Hello to all who read this. I have a dx of SLE/uctd with constantly evolving symptoms. I haven't been well this week and have had bad knee pain. The swelling and redness seem extreme this time and I would like to know if others get this degree of swelling too.
Also, my recent letter from Rheumatology states the muscle strength of my limbs to have decreased to 4/5 proximally and distally despite having weaned myself almost completely off the steroids and remaining pretty active despite the wobbliness. I have been complaining of weakness for 18 months but have had no evidence to support this so it has been documented but largely ignored. Is this score significant or variable depending on the individual doing the test?
Many thanks for reading. C xx